Foot pain

I am really pleased you have found something to help your pain but I am appalled that the doctors have dismissed the situation so far. I too had leg and foot pain after treatment finished. Neuropathy is a recognised problem that can result from treatment. In my case there was damage to the spine that meant vertebrae were pushing on the sciatic nerve. It is not uncommon for the pain to be felt in the foot or leg and not the back. I did need an operation....decompression....which improved things. 

I think you should insist that your GP organises some follow up. At the very least....a blood test for B12 levels. There is a definite link here to nerve pain and I have been taking it for 2 years.  Firstly I was referred for MRI. Then with those results to a neuro surgeon and when the op was over, I changed to the neurologist.  The neurologist determined the extent of the nerve damage and discoved permanent damage in my feet. The taxotere drug in chemo is thought to be responsible. To control the pain I take B12, B6 and B1 on prescription plus gabapentine which helps with cramps and numbness.

I hope the socks do solve your pain but if not....don't let the doctors ignore your complaints. The connection between chemo and neuropathy is medically recognised so at least insist this is eliminated.

Take care. Love Karen

Hi, I have experienced this a couple of times, I also found a compression stocking to be helpful. I was referred to physio, who told me that they saw my symptoms a lot in women who take AIs ( Anastrazole in my case). Mine was caused by the effect of decreased oestrogen levels on the ligaments. 

I really feel for you as I had this & understand how debilitating it can be.  I had it across the top of my foot & it was really painful to walk.  I gave it 3 months as I put it down to Letrozole & hoped it would resolve itself as my body got used to the medication.

When I raised it with the oncologist, he advised stopping letrozole for 4 weeks to see if it made a difference. He said he didn’t think it was csided by letrozole but couldn’t be 100% sure and the only way to see was trial & error!  I noticed the pain easing pretty much straight away although it did take about 3 weeks to get better.  

I went back on Letrozole after the 4 week break & was terrified it would start up again but it hasn’t thankfully.  It’s really odd how these AIs affect us in different ways.  I really hope this improves for you. 

Thank you for your reply day 2 of wearing the compressions socks and I feel like I am able to walk a lot better the pain has decreased a lot , still there but better . I am due to see my oncologist in august so will discuss some more with them I do wish they would talk to us a bit more about the lasting affects of treatment it can have on us all I know everyone is different but it seams a lot of people from reading on the internet get this type of difficulty 

Yes I believe that this is the case with me too thank you for your reply 

It’s a hard decision to make to come of the letrozole I have never been told that this can be an option again lack of information u keep battling through the pain ever day hoping it will eventually get better but how long do u go on some days are better than others and I’ve reached a point where I’m just sick of putting up with it so fingers crossed x