After treatment

Might it be a ‘frozen’ shoulder? Shoulders don’t like immobility and will seem to use any excuse to play up! Physio will help but it’s a long haul of gradually increasing those movements and a daily battle to do those exercises as often as you can, to begin with a couple of minutes every hour will pay dividends, eventually.

yes we do get dropped after treatment is done, but rest assured, they have all moved on to the next urgent referral. 

Hugs xxx

Also not sure if you’ve read Dr Peter Harvey’s article about ‘after treatment’ , will look for the link and post it.

https://workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

hugs xxx

Wow, really feel for you,pain in upper arm after radio, tick,given very strong pain relief did not even touch it. no sleep because of pain ,tick,struggling any thing over shoulder height and putting arm round my back,tick,arm pain will go and it will mine started to be one day pain free and then two and then was pain free a week and then you start to think what have i done to cause pain today and you cant your body has been through hell and it will repair itself.kind regards

Sounds very painful. I did my exercises religiously - 3x a day all the way up to radiotherapy, and then I found that radiotherapy made me really stiff again, so I had to do them for at least another 3 months or so. And it was many many months following rads that I didn't feel the stretch when reaching up to get something from a high shelf.

I was shocked how immobile my arm and shoulder were after the operation, they really do cut into some nerves I think.

I still get some pain even now and I'm over 2 years past rads and almost 2.5 past the op.

If you aren't still doing them, my advice would be to start doing your post-op exercises again 3x a day and see if that helps, while you're waiting for your medical team to believe you. At least you will feel like you're doing something, and it may well help.

Did you have lymph nodes removed? That can add to the agony after effects. I sailed through mastectomy and 5 lymph node removal (1 cancerous) in Feb last yr and this yr stiff as a board under arm, rib discomfort and pain in neck, opposite side!  Keeping up with exercise and although I don’t feel any lumps, GP is sending me to lymphoedema clinic in July just to double check.  I guess we all feel abandoned when we’ve been cosseted through treatment, but there is help out there, somewhere!! I wish you well xx

Hi Alib,  I feel for you and understand your pain.  I too suffer pain in my right arm, shoulder and back.  I had a mastectomy with reconstruction but then it was discovered in 7 out of 14 lymph nodes so had to have chemo and radiotherapy which ruined the implant so had to have all done again!!! That was in January so I’m 5 months post op.  I struggle to turn over in bed.  I’ve had physio for chording and I’m doing Pilates.  When I stretch my arm it’s sometimes agony by it’s very slowly getting easier.  I think it will be many many months and probably even a lifetime of stretching.  I was told if you don’t keep it up it can get worse.  I don’t think I will ever be pain free.  I do have a telephone appointment with Onco soon so will discuss.  I’m full of other aches and pains too.  I started on Letrazole and now Anastrazole.

This all started in January 2021 so two and a half years ago