Hi
Understanding this is a long shot, BC suggested posting on here but don’t mean to scare anyone, what happened to me is very rare.
Diagnosed with breast cancer after routine mammogram on the 14 th February, biopsies followed and surgery on the 31st March, lumpectomy and lymph node.
Unfortunately cancer traces were found in the first lymph node that was removed, although surgeon was happy with breast but would need treatment. Surgery went well recovery was great.
Booked in again on the 11th May for full lower arm lymph removal, thrush didn’t go according to plan, I went down at 9am and woke up at 12.30 in icu. I was told I had a reaction to antibiotics/anesthetic. Resulting in my blood pressure plummeting, ventilated and heart compression. Discharge note stated cardiac arrest.
Talk of visiting allergy clinic at St James but there was a 6 month waiting list, the waiting game that wasn’t an option. Booked in again for today the 2nd June. A off the cuff phone call to speak with the anesthetiser who had looked after and referred me on Tuesday led to me being told that the anesthetised had refused to operate until I had testing.
At this point I had received all paper and booked in for bloods on Wednesday. Surgeon confirmed op was cancelled and I now have an appointment for allergy testing on the 12th June as I am still classed as critical unfortunately no one thought to tell me that allergy testing can not be carried out till 4 weeks after reaction.
After MDT meeting yesterday I was given two options one to begin radiotherapy for breast and armpit, no chemo, allergy testing and hormone blockers. Second option surgery after allergy testing and start hormone blockers now. Surgery asap after testing.
I’ve lots of apologies for being messed about and I am constantly being told I have been unlucky as my case is so rare. I was initially told in the grand scheme of cancer mine was good and my nodes had scanned clear, I was slow growing and none aggressive tiny lump behind my nipple picked up by mammograms on the 14th February.
I’ve opted for surgery after family meeting and unable ti live with anymore ifs and buts than needed. I am seeing a councillor since I nearly died. Off work, I love my job in school but they’re scared of me catching anything. I feel shafted as there has been a lack of communication between departments and no one taking overall over ship of me with the different things that have happened. No one seems to communicate with each other let alone me.
if anyone has had anything similar happen, please.
