Hi I’m diagnosed invasive lobular cancer, triple negative. Had two
surgeries for wide margin and some lymph node clearance. Age 76
Would like gene test, been told too old, my daughter diagnosed last August with BC er positive, she hasn’t been offered although they know of family link, I worry for my grandkids.
Could your daughter ask? I recently had one as my sister had breast cancer, as did an aunt and a great aunt. My very elderly uncle also had prostate cancer. I have two daughters in their 20's so was referred. It takes a couple of months, but my results were negative for all the main culprits. It depends how much history you have, as I think that the test is quite expensive, and I had to do the blood test through the genetic clinic at Great Ormond Street hospital. I'm 62.
I think it’s ageist not to offer the test. In Leeds where I am it is not offered over 60. At 59 I was offered it and found out that I am a carrier of the PALB2 mutation. It has significant implications for me and my family - but also knowledge is power and it gives us potential protective options.
I agree with above comment - keep pushing! They will say its a ‘resource issue’ but its poor when it has such a potential impact on your life and future young lives.
Very interesting! I told my daughter and nieces to refer to their GP when I got BC as my grandmother has BC years ago. All their GPs not very interested but MAY have logged this in notes.. never thought about gene testing but will look into this to protect their futures. Bless you all, it’s a tough gig! X
Just had some news re gene testing looks like they
maybe taking my request further as been invited to discuss family tree etc
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