Decisions Decisions

  • 5 replies
  • 276 subscribers
  • 777 views

Hi all

Think thus is my first post on the group , so thank you for welcoming me 

I  recently grade 2  breast cancer ,found in the nipple duct and in one lumph node.  Thankfully it was all removed, however , due to the grade and my history I'm going to have ongoing preventative treatment,  radiotherapy and hormone blockers 

I was due to have the oncotype test to determine if I need chemotherapy or not, however the lab in the states says due to it bring skin its not  eligible for the test, even though my oncologist challenged them

I'm now faced with having to decide if I want chemotherapy or not, even though my oncologist says I'm low risk, it's essentially down t9 me if I want it or not 

I don't really want to if I'm honest, but I'm scared not to ,in case it comes back and then the chemotherapy doesn't work 

To say I'm torn is an understatement Tired face

I'm just still contemplating 

Anyone rlse Bern in this situation? 

  • Not been in the position of choosing chemo or not, but I was glad they offered chemotherapy. I wanted them to throw everything at me, which they have done. I was mid-40s when diagnosed and they said they wanted me to live for decades to come.

    I did get a choice of which hormone blocker route to go down, tamoxifen or go into a menopause with zoladex and take exemestane on top - I chose the menopause route. Although survival rates were the same, risk of recurrence was less if I went into menopause, so I chose that.

  • FormerMember
    FormerMember

    My response would be go with what's on offer as professional advice has to be worth something. I wish you well xxx

  • Hi Keanza, I feel for you as it is not an easy decision to make Heart️ I am not in your position as I have been told I will need chemo, however, it has not stopped me weighing it all up as I want to make an informed choice that is best for me. 

    I read somewhere that when it comes to making these difficult decisions to ensure that the decision you make is one that you can live with ie you will not look back and blame yourself if you have a recurrence, as there are no guarantees. I am not sure how much help this is but I wish you the best of luck on your journeyHeart

  • I don't quite understand about the skin. I had oncotype test done and came out at 29 so although I was in the category of a discussion to be had (score between 15 and 30) it was an unfortunate no brainer to put myself through adjuvant chemo. Up until now the chemo hasn't been too bad (4 cycles ec). However this 5th cycle has knocked me for six. You are always in control and if you did decide on the chemo route ask questions around what would be options to stop if you didn't cope so well. 

  • Thank you, its not been an easy time and I think I've come to a decision x