I’m sat up in bed with my dog at my side . My husband is downstairs watching the footy. Im normally a pretty positive person but I’ve had a crap day today and am feeling really low. I have my “Feeling sorry for myself”head on today and have literally noone to talk to about how I’m feeling. The hospital have been to trying to contact me today but we seem to keep missing each other. I know what it’s about, a talk about my next lot of treatment. Is it my 21 or 22 round of treatment. Tbh I’ve lost count. After nearly two years the cycles just seem to blur into each other. The hospital staff are amazing and I wonder each time I go in, how they manage. The menapause symptoms caused by my treatment are the worst and I regularly wonder if I am completely losing my marbles. It has been one of those days where there has been anger, despair and loads of tears and am now emotionally exhausted from it all.
can someone please tell me I’m not the only one who feels this way.
Hi Frenchie, we all have days when it's all just too much. "It's OK not to be OK" as the saying goes, and you have been at this game for such a long time. No wonder you're feeling like this. Don't forget the Macmillan helpline - you can call them and offload. They are so supportive and caring. And of course we're all here to help in any way we can. Sending you a big hug and hope tomorrow is a better day xx
Dear Frenchie 53 Frenchie 53
I haven’t been on here for a good while , I’m now 4 1/2 years clear . You caught my eye . I have a lovely friend who lives with cancer , a more positive person you would find hard to find but even she has off days . I once phoned her and she said she was busy that day - having a Pity Party - on Pity Party Days she does nothing ! She does get out of bed then lies on the couch , watches what she wants on the tv , listens to music she wants , eats what she wants , cries if she wants . I did that a couple of times too . There is something about giving yourself permission to do as YOU want to plan the day or take it as it comes . She told her family and they knew not to expect anything from her , they could hand in flowers , chocolates and bath goodies but that she was unavailable ( unless an emergency) .
I think the taking control and planning the next hour was very empowering as cancer robs us of our own control over our health . But planning your pity party hour by hour is control .
I wish you well , take care and be good to yourself
Ruby Rose
I feel for you but you are so NOT alone! I’ve been doing great since mastectomy/chemo/RT then BANG! Optician tells me she thinks I’ve got diabetes highly possibly due to chemo drugs or Letrozole. awaiting blood test with GP..Haven’t slept since she told me and like you, feel helpless and frustrated. Can’t whinge to too many people as they don’t understand and you know you’re not the only person with problems! It’s a minefield out there! Chin up! Onwards and upwards! XxxX
That’s true it is. Had another awful day today. Dragging myself to work when you feel awful sucks but i am beginning to feel better.
Thanku for caring. Xxx
Hi Tavares
it sounds like you have had more than your fare share to cope with. Fingers crossed that it turns out that you are not a diabetic. I fully understand about everything you have said, so I’m listening if you need someone to whinge at or whinge with xx
Thanku for your reply . I’m one of those people who doesn’t like to bother others with my problems. I know how super busy everyone is . I’m beginning to feel much better. It’s nice to know that there are people out there who have taken time out of their day to reply to my message. I now don’t feel so isolated or alone in dealing with this awful disease.
Hi Ruby rose
what amazing news. Congratulations on kicking cancers butt. Thanku for replying. Take care.x
I think most of us will be able to identify with what you're saying. I believe we need to acknowledge our feelings/moods, etc and not feel guilty about them. It's a hard journey we're on. I'm clear of cancer now (fingers crossed) and on Letrozole (ten years in total) which has its own less than pleasant side effects. This forum is great - I pop in and out but always find something that raises my spirits. 'Walking back to happiness' is good for photos of the great outdoors. I also go to sessions at my local Maggie's Centre - you can talk about things with people who do get it (or not - sometimes we just put the world to rights!). I hope you're having a better day today.
Take care,
Diane.
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