Letrozole / Zoladex Leg Pain

Hello. I'm on letrozole, zoladex 4 weekly injections and bisphosphonates and have lots of aches and pains around my joints. I've also had pains in my shins. To be honest it's a lot worse than i ever expected it to be. 

Yes joint and long bone pain is normal. I experienced it for almost a Year after starting. I am only just starting to feel a little better after the injections. Exercise helped.

Hi Stephj I started Letrozole and a bisphosphonate in August of last year and now also have joint and leg pain, especially at night.  The pain often wakes me up and I take paracetamol which helps - whether this is good to take regularly or not I don't know.  I had a mastectomy and 15 sessions of radiotheraphy last year which I really had very little problem with but this joint and leg pain is becoming quite an issue.  When I have my review in March I will ask whether a change of drugs might be a good idea.

I had an appointment in clinic yesterday. They said paracetamol is fine and that if it gets too much they will change my letrozole to something else. I think for me it's the shock of how bad the side effects are. They did say they would probably be bad but i didn't expect it to be so bad. I'm learning to cope with them but i also worry it's something bad. The side effects are the kind of things they tell you to look out for incase of spread so it's all pretty challenging. I'd rather cope with the side effects though to keep the nasty c word away!

Thanks for everyone’s responses, at least I am not alone with the shin pain which is reassuring.

Agree with Stephj it is worrying as my mind keeps running away with me & I think it’s something bad. I drive myself crazy with overthinking everything. I’m not an anxious person normally, but this has left me with constant worrying and stressing about everything. I convince myself that the cancer has returned to my bones 

I have signed up with the Moving Forward course with Breast Cancer Now, as I seem to be going down a dark whole at the moment and the daily crying is so out of character for me.