End of Treatment

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Hi Everyone, new to this website and thought I would just ask this question...

I had breast cancer 10 years ago, lump and lymph nodes removed, chemo and radiotherapy.  Once treatment finished I was put on Letrozole and then a couple of years later on to Tamoxifen and I stop taking this in August this year.  I don't know how I feel, part of me is delighted to be stopping the Tamoxifen because of the awful side effects BUT on the other hand I am terrified as I think of it as my 'safety net'.  Has anyone else felt like this?  I know I should be celebrating and shouting from the rooftops but can't help worrying.

Look forward to hearing your thoughts.

Thank you.

  • Hi  , I will hopefully reach my 5 years clear this autumn, and could stop Anastrozole in December. But I’m strongly considering asking for a further 2 years as I think that’s been shown to help continue to lessen chances of recurrence. But it’s a tricky as on the one hand I’d love to stop taking it, as I’m tired of the side effects, but on the other hand I’m scared to lose that ‘safety net’, just as you’re describing. So you’re definitely not alone! Love and hugs, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • HiTonada

    I feel same, should be stopping ibandronic acid soon been on it 3 years and while it will be nice to stop, not have side effects and have a coffee first thing at work,as you cant have anything else a while after taking it agree it felt like a safety net the letrozole is another 7 years yet !  

    Xxx

  • Hi, I would be nervous too. I’m on Anastrazole for 10 years, and still have a way to go, but it has already crossed my mind. It might be worth investigating how long Tamoxifen stays in the system for - it may be longer than we think? 

  • I was coming on with exactly the same worry. My 5 years post op/chemo/radio ends in June and I think my Letrozole will end then. Hate the side effects but rather them than C not sure if allowed to take for longer?

  • Hi  , I’m in a similar situation, was originally on Letrozole but swapped to Tamoxifen due to already having osteoporosis, I finish in April this year and have just been discharged from the breast unit. Yes it worries me too but I’ve been told I’m low risk due to not needing chemo or radiotherapy and having had a full mx. 

    I suspect we will all be on our guard to self-check frequently!

    Hugs xxx

    Moomy