Feeling very low & depressed

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Hello all,

I was diagnosed with BC in October, DCIS & IDC in my right breast. I had a lumpectomy & sentinel lymph node removal December 1st. I revisited my breast surgeon on the 14th December for results. He told me the lymph nodes were clear, I was ER positive & HER2 negative. He then informed me that the margins from the DCIS were not clear and pathology showed some further cancer cells. I have to have more surgery on the 5th January.

I know I should be grateful that the lymph nodes were clear, but the thought of further surgery is making me feel so low. I still have pain and discomfort in the area of the lymph node removal and I’m so worried that a 2nd operation on my breast will just make matters worse.

I do not seem to be able to enjoy anything, every thing seems so bleak. This morning I haven’t stopped crying & think what’s the point of all of this. I have had lower back pain for almost 4 weeks now & pain in both my lower legs and ankles. I do have an ongoing back problem, but every twinge I just keep thinking the worse, has the cancer spread. My left breast has been aching and of course I’m thinking the worse there also.

Is it normal to feel like this? My poor husband is suffering because I’m so miserable. He has been my rock and I feel I’m putting him through hell at the moment. I have a daughter with a young family of her own & I don’t want to be upsetting her with the way I’m feeling.  Where do I go from here? 

  • FormerMember
    FormerMember

    If it helps I have similar diagnosis as you (Stage 3) but 5 lymph’s removed 1 was cancerous, however my sister was also diagnosed same time as me (beginning of this year with BC) and has REFUSED all treatment! She  is now really poorly with headaches and intrusive eye pain. She is a born again Christian and believes God will take care of her. I, on the other hand accepted all treatments offered, red devil chemo, 15 RTs and mastectomy! I was recently told that “evidence shows the cancer should NOTreturn”. Of course we all worry that it may BUT I can put those thoughts to one side and get on with my life. No more hospital visits! I know which I’d choose if I was advising anyone at the beginning of their journey. BW xx

  • I had second operation as margins not clear. The second operation was nothing like the first and recovery was much quicker. The surgeon also “tidied up” my scar and it was much neater second time round. I found the recovery from the operation to remove lymph node took longer and was more painful. After 6 months it still feels numb in places. I hope it all goes well on the 5 th and you get clear results this time 

  • Thank you Tavares for your reply. I am so sorry to hear that both you and your sister were diagnosed. I guess each and everyone of us have different ideas on having cancer treatment. I am not refusing to have my 2nd op but I am sceptical about needing it for DCIS & the fact my DCIS after diagnosis was only 8mm and at my result appointment had grown to 25mm. I am happy your journey has come to an end and it’s wonderful news that it won’t come back xx 

  • Thank you October23 for your reply, that’s so reassuring that your 2nd op went so well. And it’s a relief to know that I’m not the only one suffering with the lymph node removal xx 

  • FormerMember
    FormerMember in reply to Valleyside

    Sorry I know my reply was not exactly in line with what you were asking. I can only conclude ‘they know best’ and can only advise the best course of action for you.  I don’t dismiss your pains, discomfort and how you feel mentally, physically and emotionally. It really is a journey of discovery and completely and utterly alien to us all. Your husband is your rock as you say and what you feel, he feels which is wonderful. Talk to macmillan navigators or your Breast nurses for an opinion and let them know you’re struggling. Don’t let this situation drag you down.xxx

  • Thank you Pray I am going to call my BC nurse tomorrow for some advice xx

  • FormerMember
    FormerMember in reply to Valleyside

    Did you manage to speak to anyone Valleyside?

  • Hi Tavares, I did call but it was an answerphone, I left a message. It’s a Bank Holiday, so not sure if anyone was there as I didn’t get a call back xx

  • FormerMember
    FormerMember in reply to Valleyside

    They will return your call xx

  • Hi   first of all, so sorry you’re feeling so low. You’ve def done the right thing by sharing. I too have had the same thing, Margins weren’t clear so had a 2nd surgery. They went through the same scar but only the side of my breast and not where the lymph nodes were removed. It was a bit sore for a day or 2 but that’s it, nothing like the first op and didn’t have to do all the exercises either. It was over much quicker too. Everything we have to go through is daunting but I suspect this won’t feel anywhere near as bad. But I would check in with the BCN about the pains and aches - don’t suffer in silence! Good luck and I hope you feel better soon xx