I coped well with surgery, radiotherapy and Herceptin for breast cancer but things went drastically downhill during a year taking Neratinib and then 3 years on Anastrozole (for 2) and Letrozole for another 10 months or so. After much research and soul searching and discussion with professionals, I stopped taking the Letrozole 6 weeks ago. I am 70 next year.
I experienced extreme incontinence with Neratinib and continuing diarrhoea and bladder weakness throughout the treatment followed by a horrible selection of the worst side effects from the hormone suppressants: joint and muscle pain, bowel/bladder issues, vaginal soreness, extreme tiredness and lethargy; foggy brain, memory loss, hair thinning, bloating and more. My side effects didn't improve with time but got worse.
However, what I am struggling with now is recovery! Although I feel SO much better nevertheless I still struggle with my bowels - constipation, diarrhoea and pregnancy-like bloating, plus wind - and I've started to wonder if the Neratinib especially has disturbed the normal rhythm of my body? A recent bowel cancer test was negative.
Anyone got any ideas for how I might 'reset' my body? I know I'm older now but I'm only 69. Do I just need to convalesce and rest my hormonal challenged and physically battered body!?!?
There is so much more I could say but not now. Generally, I'm a happy woman who has been treated splendidly by the NHS, has a good prognosis and is looking forward to the future. But without all the toilet stops and incontinence pads!!
Did it help with bloating and wind? You got to eat something, a lot of things seem to cause it now. 
