When treatment ends

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I was diagnosed with lobular breast cancer last December after undergoing surgery and chemotherapy then radiotherapy which finished the end of July. I was told to go home and carry on with the rest Thinking my life and I had no hair and felt so tired and completely drained and still do. Some of my friends have no idea what I went through and I saw one of them Friday night I hadn’t seen all the time I Thinkings having treatment and she said oh your fine now. I have been offered nobody to talk to and I had private treatment. Everyone just thinks I’m back to normal and have no idea what I’ve been through ThinkingFrowning2

  • So sorry to hear all you’ve been through. Is there a cancer charity in your area?  Some offer counselling as well as workshops.  Our local unit has a moving on course run by the MacMillan bc nurses but you can also go to the Breast Cancer Now website and see if there is a “Moving Forward” course near you.  I found online workshops with Look Good, Feel Better have helped me think through hair/body changes and to think more positively about how I might look (and the fact that I might even want to go out!) at some point… if you had private treatment through an insurer it might be worth asking if they offer any kind of telephone counselling.  I don’t think people mean to be insensitive but they don’t understand or I think sometimes they are scared and just have to talk over it. 

  • I’m so sorry you’ve been through so much and feel so bereft. There’s an excellent article by Dr Peter Harvey which I’ve (hopefully) got a link to https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    I think you’d benefit from reading it, so much rings true. 

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember

    You are not alone!! You tell them what you’ve been through, they sympathise then forget which I guess is quite normal. People don’t like to dwell on your ailment but when family don’t ask how you are or can’t see when you’re feeling ‘'off’ that’s when I get really upset (privately)…you’ve got US!Xx

  • Hello,

    You are not alone, I feel exactly the same.

    diagnosed in Feb and have spent most of the year going through chemo/surgery/radiotherapy which finished mid November.

    Now people just say oh well done, you smashed it and it’s all over now. I know they are just trying to be nice but for me I don’t feel like it’s all over.

    I’m left emotionally scarred, tired and cry nearly every day. I am starting letrozole & Zoladex in Jan for 5-10 years and dreading side effects. I guess people who haven’t been through what we have just don’t realize the impact it has on our bodies & minds.

    I have just downloaded the Calm app to use for some relaxation & mindfulness techniques. Not something I usually go for, but will try anything to put me in a better state of mind.

    I am likening this to grief and hoping that while having had cancer will always be a part of my life. The sad feelings will gradually fade away and each month/year will get easier.

    I guess people just want to put a positive slant on all of it which is lovely ….. but they have no idea 

    best wishes xx 

  • FormerMember
    FormerMember

    Know exactly how you feel. Friends jokingly say “Great! You coming out now?” I know they mean well but just because your oncologist says “live your life” does switch those moments round to “IM CURED!” There’s a big adjusting period so take each day at a time. I’ve noticed my body after finishing my treatment in early November is better than it was but not there yet. I wish you well xx