It's just not fair

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My wife Sheila was diagnosed with Her2 positive breast cancer last September (2021)

She had 6 cycles of chemo, a single mastectomy, 15 cycles of radiotherapy followed with continued Herceptin and Anastrozole. 

She hasn't been herself this last while and after further tests the cancer has spread to her brain. She's been admitted to hospital here in Northern Ireland today for more tests etc, but it doesn't look good. 

I'm devastated, angry, numb, confused, so many emotions that I just cannot process at the moment. 

I guess we'll find out more in the next few days, but where do I go from here, I'm lost without her? 

Colin PensiveDisappointed

  • Hi Colin, I am so very sorry to hear what you are both going through. I cannot offer any advice, I wish I could offer words of wisdom to ease your pain. I can offer my heartfelt best wishes and prayers. Do you have a support network? Take care of yourself xx

  • Hi Colin.  I'm so sorry you are going through this and know the devastation a brain tumour causes as my eldest sister had a primary brain tumour 10 years ago.  Xx

  • Hi , I am so very sorry to read this. You are right, it isn’t fair. This must be a terrible shock for you both. I’m going to mention a few things that I’ve been told by ladies that I know, and who have been diagnosed with advanced cancer. I don’t know if it will be helpful … but here goes.
    Certainly there are forums for those (and their loved ones) who have been diagnosed with secondary breast cancer. Macmillan has one, and I believe that Breast Cancer Now does too. There will be people on those forums who will know what you are experiencing and feeling, and they will know what support is available.
    A friend told me that when she received her advanced diagnosis, which was very advanced, she was offered support by a psychotherapist based at the hospital that was treating her. The P visited her at home, and my friend saw her alone. She was able to say whatever she wanted and to express her anger and fears. I would think that this service would have been available for her husband too, if he requested it. I would ask at your hospital, or your nearest cancer centre to see if anyone can professionally help you. 
    I hope this is a start - you are not alone, even though it might feel like that. With my best wishes, Carole

  • FormerMember
    FormerMember

    You are the 2nd person today I have heard who has been given this devastating news. My friend with lung cancer who is super fit has also seen a neurologist this morning, who confirms her C has spread to the brain. We’re all in fear of secondary. My heart goes out to you and Sheila..I cannot imagine how move forward with this news. I wish there was a magic plaster to make it all go away. Look after each other. XxxX

  • Thanks for all your kind comments and best wishes x

    Got MRI results yesterday and it didn't show anything unexpected that hadn't already been seen on the CT Scan. Dr seemed fairly positive that something can be done so they have to have a meeting to discuss a treatment plan. Radiotherapy etc

    Visiting restrictions are brutal however due to covid, she is allowed 2 nominated visitors for 1 hour once a week each!

    I've seen my GP and Mental Health practitioner and have counselling in place and am signed off work for the next while so trying to be pro-active and look after myself, but its incredibly tough.

    Colin x

  • Colin I can’t even put in words how sorry and sad I feel for both of you. PrayPrayPray That you will find the strength to be by your wife’s side in her hour of need. God bless you both. I agree it’s just not fair CryCryCry xxx HeartHeartHeart

  • I have a positive update on Sheila's condition. She's home! Scans have identified 2 tiny areas in her brain that have caused inflammation and her symptoms.

    Steroids have reversed the symptoms and she's her normal self again. Oncologist is very hopeful that this can be zapped with radiotherapy or other treatments. He said in 20 years he's never seen anything like this picked up so early so it's pretty rare to be at this stage.

    We're in a much better situation than a few days ago and I'm thankful for all your best wishes and love

    Colin x

  • That's great news, and so lovely to hear. A little bit of sunshine works wonders, so so pleased for you both, especially your wife ofcourse Blush