I was diagnosed with ER positive grade 3 June 2021. I have had 6 months chemo that apparently I was very sensitive to, so I was poorly virtually from day one for the whole six months. But not complaining because it did get rid of the tumour completely, I then had breast surgery in January (reduction) that still hasn’t healed properly, radiotherapy and x14 3wkly phesgo injections, I should have has another 4 but they have caused permanent neuropathy in my hands and feet, each injection made it worse than the last one. I returned to work in March this year against the advice of the Macmillan nurse because my husband kept pushing me to get back to normal and to keep the wage coming in. Work were great at first had a phased return, but when it came to going back in full time it all changed. I asked to reduce my hours to part time but was refused. My job involves driving to meet clients in their homes so I asked for adjustments to be made as I find it difficult due to having numbness and painful pins and needles in my hands and feet, that was refused and I was virtually told they will go for dismissal on medical grounds.I have ended up taking a job at the same place 4 days a week with a big reduction in pay because it would be less stressful (NOT at all). I am so tired all of the time the medication I take gives me pain in my joints and makes me feel spaced out, I can hardly function and all I hear from my husband is stop complaining about being tired we’re all tired just get on with it and you will soon get back to normal. Then accused me of just wanting to stop work. I really can’t keep going on like this and know I need to put a stop to it, but I’m 60 years old been through the worst 12 months ever as all of us have fighting this horrible decease have and still are. I don’t have the strength to pack up and start all over again and especially now I don’t even earn enough to pay rent somewhere. I’m sorry I think I really just needed to get this off my chest.
