Feeling frightened

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I had a lumpectomy and lymph node removal in February this year following diagnosis of ER+ in January. Finished 5 x sessions of radiotherapy in May and now on Tamoxifen which has been problematic due to side effects but I think I've found the right brand now.

Since last Thursday I've been having some pain in my breast in the same place where the cancer was and under my arm and I'm so frightened that they didn't remove everything and its come back. I never realised that once I'd been given the all clear that it doesn't end there and just how worried I'd feel about it coming back. Before diagnosis I never found any lumps or anything, it was found by routine mammogram which makes it worse in a way because I'm imagining it could be there again and I might never know.

My daughter gets married on Saturday and I don't want to speak to her or my husband about this because I feel I've already put them through enough and I don't want them worrying before her special day. I've told myself I'll contact the BCN as soon as the wedding is over and she's gone on honeymoon but I'm just so frightened and struggling to hold it together right now. 

  • Cazza8008 try not to let your fears overwhelm you.  Have you thought about just giving your BCN a call this week before the wedding and having a chat and arranging to go in to see them next week as soon as the wedding is over?  The breast care nurse may be able to reassure that the pain you are feeling is not unexpected and if they feel that you should be seen then they can arrange a date as soon as possible to fit in with you after the wedding. Knowing you have started the process of doing something may help your anxiety a little and it may be that chatting to the breast care nurse may alleviate more of your anxiety.  If so you will enjoy the wedding more and when you tell your daughter afterwards you can say that you have started dealing with it if necessary and hopefully that you just had a scare.  I had a lumpectomy nearly 8 years ago and still get some pain sometimes. Once you start thinking there might be something it is easy for it to grow in your thoughts and be very frightening but a conversation may shrink that fear back down.  Take care.  

  • Hi

    As Flossy says, try not to worry.  It is very true that the fear of recurrence can be nearly as debilitating as having been diagnosed in the first place!  Try and think of it this way, you had the cancer removed, the radiotherapy is an extra protection and because of being ER+ you have an even further level of protection. 

    I was 100% convinced on my first annual that it would be back - I was extremely shocked when it wasn't.  I am now 5 years down the line and after this month, no more ER+ tablets.  Glad you have found the right brand for your tablets now Slight smile

    It is entirely possible that you have done something 'extra' like lifting something slightly heavy and not realised it, to cause the pain that you feel.  On my last meeting with my BCN, I mentioned that I was still getting pains and she said it really isn't unusual to get pains over a year after the operation and it did surprise me that unlike a broken limb, a breast operation can take well over a year before you are free of the pain.  It was definitely well over a year before I realised that I could lift my shopping bags without feeling the effects of it a day or so later.

    Enjoy your daughter's wedding and put it out of your head.  It is highly likely just a simple reason of 'over doing it' - especially as you have probably been concentrating on wedding preparations and not thinking about it so much at the moment.  If you can't put it out of your head, you might want to give your BCN a ring before the wedding and you will probably get the reassurance you need before the big day!

    Kindest Wishes,

    Lesley

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  • Easy to say but try not to worry.  After radiotherapy I got lots of shooting pains at random times.  Still do occasionally but it is something that does happen.  Additionally, nerve endings are still repairing from your operation.  Do call your BCN for reassurance before the wedding.  Enjoy the special day.

  • Hi Flossy, Lesleyhelen and April2021,

    What you've said makes perfect sense and thank you so much for taking the time to help. Its difficult to think rationally when your mind is spinning straight to worst case scenario. I am going to reach out to my BCN before the wedding even if it's for some calm words of reassurance. I know it's still early days for me and it's good to know there's lovely people out there who have more experience and wise words to bring me off the ceiling. Thank you x