Just had double mastectomy

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I’m feeling very low. I had a double mastectomy two days ago at the Royal Marsden and came home yesterday. I know it’s early days but I’d really appreciate any advice. I bought a big special mastectomy pillow which is useless! I keep crying. How long will this last?

  • FormerMember
    FormerMember

    I’ve had a single and tbh was extremely glad to be rid of the offending article, in Feb this year. I had drains and a pain pump and everything was fine. It’s important that you exercise and try to stay focused and remember why it had to be done. Comfort is an issue at night as lying on your back may not be a favoured position but tiredness will overcome this, hopefully. I really wish you well and as we know, time goes quickly and is a great healer. It’s just getting used to ‘something completely different’. Best wishes.  Sleeping accommodation

  • Thank you. It’s so nice to hear from someone who understands. It’s only been 2 days so maybe I’ll feel a bit better tomorrow - not so weepy! 

  • FormerMember
    FormerMember in reply to GailR

    It sure is an emotional rollercoaster and the best people to speak to ARE people who have/are going through it! Kind regards xxxx

  • Hi Gail, I had a single mastectomy and lymph node clearance in March 2021 - I was diagnosed in August 2020 during lock down - not ideal! Now, life is great - I was out on my bike the other day! Exercises are a must  - it's hard at first but it does get better. - I shed many tears thinking I would never get movement back but I did - so please keep going. 3 times a day I did the exercises - I'm now down to twice a day. You will be able to lie on your side - it'll take a little while but it will happen. Getting comfortable and trying to turn in bed is a difficult at first but you will work it out. Keep going - there is light at the end of the tunnel. As Tavares said - remember why you had it done, time does go quickly and is a great healer.

    We are the survivors - think positive.

  • Thanks Scottie. I’m persevering with the exercises but went back to the hospital this morning to check on swellings/bruising. All is normal apparently. Well I had only been a week since the op. Can’t believe how tiring it all is. And I sort of don’t know what to do with myself - do I push myself or do nothing? Next week I hope they’ll have the results back but if not at least they’ll remove the right band!

  • I'm having a double mastectomy on the 7 th July. I thought , ok no problem , then googled the images and it's a lot more brutal than I thought. I had a mammogram and was diagnosed straight away. Had had a lump for years and I have been diagnosed with stage 1 and 2 cancer so feel very blessed it's not worse. Nice to hear it's not a breeze, will make me feel better if I struggle. All the best to you. 

  • You have a very positive attitude , nice to hear. I have a double mastectomy on the 7 th July and appreciate your response and can resonate with you. 

  • Thank you. I have a double mastectomy on Thursday and appreciate your advice 

  • Thank you so much. I have surgery on Thursday and I''M scared of not waking up. Totally ridiculous. But I'm still scared