Recurrence

Hi boober, sorry you’ve had this news, recurrence is something that plays on my mind a fair bit as I know it’s not uncommon. Hope the bone scan and CT scan are done soon and that you don’t have to wait long for the results. Horrible to be thrown back into limbo land while you wait for these further tests and results. Hopefully once you have all the information and a treatment plan, you’ll be able to focus on ‘moving forward’ with whatever the plan is, and get started on getting rid of the beast once again. As you no doubt know there are many folk here who have had recurrences, some who’ve finished their second course of treatment and others who are on some form of ongoing regime. 
Wishing you well and sending a big virtual hug your way, HFxx 

Oh gosh I’m so sorry to hear this. I rearly wish you well. Stay stoic, you sound upbeat atm, but I know this must be a grim struggle. BW xxx

Hi and thank you!, scans done , results next week . Appointment with bcn the other day , nothing to indicate I have spread   but will need to wait for radiologist to report them ,  provisional  plan double mastectomy and chemo.... weird but I'm actually chuffed they're getting rid of both boobs  , I don't need them and just happy  to get on and get rid of this cancer and very much minimise the risk of it coming back again.

 Anything like this hits you and your family like a ton of bricks , but actually I found  knowing what is happening and getting a  treatment plan really helps to gets my  head in gear and let's me get focused on getting on and looking forward to being cancer free again!!  Xxxxxxxx

Hi I was wondering how you were doing? I’ve just found out I have a recurrence and I’m in a state

So sorry to read this

Sending hugs

Fly

So sorry Tinkerbell. Someone told me that if I get a local recurrence it is still curable. That really helped me. I just hope you can get your answers and plan soon so that you have some clarity. The waiting is tough. Sending love to you x

Hi tinker bell , I'm so sorry you have a  recurrence!  It really does knock you for 6 and  feel a bit like a slap in the face, and leaves you feeling a little lost , but honestly you' ve beaten it once,  you can do it again! . Hardest thing really was telling my family I had cancer again ,  but they are amazing and once over the initial shock,  as long as I tell rhem exactly whats happening they are ok!   I am actually doing pretty well   I had a double mastectomy and node biopsies 7 weeks ago ,  all tumours were removed and my node were clear and bone scan and full body ct were also clear . has my first cycle of chemo 10 day ago , which was ok , I felt tired abd kind of car sick for a week but feel fine now , they re going to review my antisickness meds this week when I get my 2nd cycle   .I'm getting 8 cycles of  chemo   which is more a " belt and braces" precaution  as a  just incase as   I have no evidence of cancer, and after my chemo is finished I ll have yearly reviews to ensure I remain  cancer free . Apparently there is minimal  chances of another recurrence , so all very positive,  which is brill!!                           Have you got a treatment plan yet?  At the moment yiu ll feel all over the place , but you really can do it !  Xxxxxxxxxxx       

Hi lovely to hear you are doing well. Thanks for replying. I have my appointment on Tuesday for my treatment plan. My ct scan was clear and HER2 negative. 

I’m feeling let down as I had a mastectomy and low onco dx score for recurrence and on tamoxifen yet it’s still come back! I’m confused how!  

Thanks for responding. The waiting is the hardest. I just want to stay in bed. Feeling very depressed which is not like me at all. 

I hope you are doing ok? 

Thank you for your kind words. 

Are you doing ok? 

I’m  finding the site hard to navigate