So after 4weeks of EC fortnightly 2weeks ago I changed to Pac/carb weekly for 6weeks and now I just feel ill all the time 1st week had terrible constipation tiredness and leg pain although sickness was much better and when checked it was found my white cell count had gone sky high from the filgrasim injection so they stopped the jabs and gave me laxatives to take as they didn't want me to have the constipation again this week laxatives worked too well giving me chronic diarrhoea which is getting better but taking its time and making me feel shaky had blood test today but because I was shaking so much and had a very fast pulse they kept me under observation for a bit before doing test drove home got indoors just about and just started crying uncontrollably really scarying my kids up till now I've tried to just keep going and do any crying when they weren't around as didn't want to upset them any more than nessasary . is this what it's going to be like from now on or is it just a bad couple of weeks as I don't think I can cope
This goes to show how individual the response to chemo can be. I am saying this because traditionally, EC is supposed to be harder on the body than paclitaxel, yet it seems from what you are saying here that pac/carb is hitting you much harder!
When I was on a form of paclitaxel I too had similar issues although I don't think I was hit as hard as what you are describing here. Some of the phenomena I experienced were very short-lived. Some, such as slight nerve issue in parts of my feet and a certain digestive aspect are still ongoing, but in a much reduced way that no longer interferes with day to day life.
You description makes me wonder now if what you are experiencing is a combination of the effects of the new chemo with the body still dealing with those of the previous chemo, which could possibly make the transition period harder than had you been given pac/carb without having just come out of EC. However, tell your oncologist not only what is going on but how you are feeling about it, he or she may be able to adjust the dose if needed.
How old are your children?
Thanks GreyCats
Your message made me feel much better i hadn't thought about still being in transition but that would kind of make sense because they are doing the hard push on the chemo I guess my body just hasn't had a break I am seeing my consultant on Wednesday so will talk to her about it my children are grown up 25y and 29y but I've tried to shelter them a bit from the whole thing and stay positive and active as I didn't want this taking over their lives like it is mine just didn't quite work today they were great though my son just held me whilst I cried and my daughter just took over the mothering piping me in bed and telling me I was aloud to have a crap time when I have got all this poison being pumped into my body to make me better then I had a 3 1/2 hour sleep which seems to have helped a bit
Sleep can really help, works for me too. Sounds like you have great children!
I hope your oncologist can shed more light on all of this on Wednesday.
Your children sound wonderful and of course they want to look after you, you are their wonderful mum. My chemo is opposite to yours and as GreyCats says I am struggling with EC now but the PAC I could deal with much better. As well as the transition there has to be a cumulative/mixing effect as well (Not medically trained so just my thoughts). I have one left to go, a week on Wednesday and everyone is using that as a positive goal but I can only think about feeling so I’ll for the next 3 weeks. I too like you let my guard down a little with my 2nd lot of treatment and got upset - sometimes it is the right thing to do. Take good care and I hope the symptoms ease up a little for you. x
Thank you Moco
Spent most of the day at the hospital having test done then just the PAC treatment no Carbo they think it's a bad reaction to the laxative they prescribed now home with supplements for magnisiam phosphate and potassium to see me over untill I see consultant tomorrow
So saw the consultant today had a long chat and they think it is a combination of getting dehydrated because of the diarrhoea not eating enough and digestive track becoming a bit over sensitive because I of doing the accelerated chemo is not giving my body much chance to recover so now have some suppliments to take, tablets for the diarrhoea and instructions to try things like ice cream ,soup, and custard to eat as they give you liquid as well as food young my fluids and rest more has certainly help me feel a bit better it's going to probably take a few day till I feel as good as I can but just knowing it's not me being sill or something more serious has helped so much thank you for all your support over this it helped loads
over last week things just got worst and worst seems the carbo was doing too good a job on destroying cells causing it to start affecting my bone marrow and in turn my blood so I ended up needing t have 2blood transfusion s antibiotics and a few other drugs along with a week long stay in hospital now feeling so much better and positivity is slowly creeping back hopefully won't end up feeling bad again as they are reducing my carbo by 20% and I can get through the next 8 weeks without falling down that hole again then it's just surgery and radiotherapy to cope with couldn't have got this far without you guys support though so thanks everyone i can do this ️
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