Hi everyone, I am on letrozole and find the hot flushes very difficult to cope with. Anyone found an antidote?
Am sorry you are struggling with the side effects. Some things that might help are sage tea. Some find CBD helpful. A stash of flat gel ice packs in the freezer for urgent use. Some people find a course of acupuncture settles things down. Cotton nightwear and clothing can help. If its really tricky, the GP can prescribe medication to help - I think venlafaxine. I really hope you find a solution that works for you x
I am on zoladex and exemestane so the sudden, medically induced menopause during chemotherapy gave me intense, anxiety-inducing hot flashes every 20 mins 24/7. Not fun.
Glad to say they have calmed significantly but there were a few things that helped other than time calming them naturally (it's been 19 months since I started zoledex)
Dress in layers and make sure the top one is easy to get off. I had bad anxiety and claustrobia with then at first and being able to get a bit cooler quickly, helped
Get a handheld fan to take with you and another fan for your bedside.
Cool gel pillows really help me cool down at night, especially my feet which I find stay very hot.
I use a sheet at night to help me get back to sleep and then when I get cold, I put the duvet back on. I was finding that no duvet at all vs duvet just meant a continual cycle of too hot/too cold.
If your flashes are also causing anxiety like mine, then I have found acupuncture has really helped. I think it has helped frequency of daytime flushes but not nighttime yet (I have had 7 sessions). But it has definitely helped with general anxiety, sudden flashes of anger, mood changes. And all that helps with being able to feel a bit better about the flashes. I feel better able to cope with them now rather than feeling out of control with them.
I tried sage off and on and at first I thought it was helping but I think it was just the flashes calming down anyway. I've tried a few more times with little difference.
I also find activity and exercise helps. If I'm outside doing stuff, I'm not having a flush.
As hard as it sounds, I seem to get fewer now that I'm worrying about them less. Nighttime brings its own focus on them without any other distractions which I think is why mine are still much worse at night. I'm trying to train my brain not to care so much and that seems to decrease frequency and intensity.
A lot easier said than done, which is why I think the acupuncture has helped so much. It is subtle, but I feel less anxious in general and all that helps.
Hi
Has anyone on letrozole had the make amirox as manufacturer
I've heard in this forum people having sun pharma and accord or cipla.
M
No I haven’t heard of that one I have tried crescent. Femera and accord. Been on accord for a week and feel dreadful. Have rang bcn to see what she says x
No as I'm still finishing sun pharma at the moment 1 more week to go.
Just picked up my second lot of tablets and noticed 2 different makes.
Now I've heard about accord but I have 1 Box of cipla and this box of amirox?
Thought I would ask before starting them next week.
M
Hi, I am on a amirox brand for 3 weeks. Feeling a little tired on them but going to keep going with this brand.
Hi everyone, good news, specialist changed me from letrozole on to anastrozole. It is so much better for me. Only occasional sweats. So am a happy bunny.
Hi how long did you take legrozole please. How long have you been in anastrozole xxx
I was on letrozole for a year and have been on anastrozole for 2 months now. The breast cancer care nurse sorted it out for me.
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