Still waiting

FormerMember
FormerMember
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It's been 2 weeks and a day, mum called gp and they said to wait a few more days, 

I'm in tears at the moment, how much longer do I need to wait 

Some background info-

Went gp 2 weeks ago due to a lump under breast been there for a month (nearing 2 months now)

She did a breast examination didn't say anything other than she will refer me to the breast clinic scince the lump has been there for a long time and not gone smaller or gone away

Its been 2 weeks and I've heard nothing, no call no letter.

Has anyone else been through this? Even the gp don't know where the appointment is based at..

Thank you for any support 

  • I remember your original post and everything you said there. About the GP; she must know which hospital she was referring you to, so even if she does doesn't know exactly where they have their clinic, she must know where she sent the referral. Whoever she sent the referral to needs to be chased up. 

    A lot of us here have spoken about the need to advocate for ourself, many times exactly at times when we don't need the additional stress of having to push through the system, but unfortunately it seems you are now finding yourself in this situation. One thing you could possibly do is an internet search to see what hospitals give breast care in your area, then start contacting them to see if you are on any of their lists. Another thing you could possibly do is raise a complaint to the NHS in your area regarding not being contacted within 2 weeks. I know you don't need the extra bother and not everyone feels up to it, but if you are so inclined, this is where I would start -- try to find the hospital independently, and fall back on complaints route if needed.

    Thanks for keeping us updated, I did wonder about you.

  • FormerMember
    FormerMember in reply to GreyCats

    Thank you so much, I might get my care coordinator to chase a hospital up for me as I think I'm just stressing my mum out making all the phone calls to the gp and crying all the time. I'm kind of used to waiting to be honest, been waiting for counselling for 3 years finally top of list so their is hope but part of me feels what if they rejected the refferal because of my age. And lack of history of breast cancer etc

  • I was thinking about your age too. As far as I know they are not allowed to do that, but go prove that they are...... if you get to a point where you really think this is what it is, certain things can be activated to force them to prove that any delay in your case is not the results of age discrimination but of other factors. We are not there yet, and I hope you don't need to.

    It makes sense to me that your mother would be stressed too. I remember my father telling me at some point that I would always be "his baby" and that the urge to protect a child, even a grown up child, never goes away.

    Is there anything you know of that takes your mind off things and distracts you, even for short period of time? For me, since I was at the time unable to do much physically, it was a dive into YouTube and other media for a mixture of cats videos and some very technical stuff completely unrelated to cats that forced me to focus and that I found interesting. Having those short spans of times of "forgetting" really helped at times. I hope you too are able to find temporary escapes sometimes.

  • FormerMember
    FormerMember in reply to GreyCats

    I have some support from 4 close friends who I've confided in, 

    Post people were on strike on the third so letters have been delayed which have made me frustrated and even more anxious.

    More blood results came through online, I have to take folic acid and vitamin d tablets aloong with iron tablets.

    I had the idea this week that I'd get some hopeful news speaking to the gp today and get things moving but it's just more waiting more delay and more anxiety. If I don't hear anything else by Monday I may consider making a complaint and writing mp

    I have a blood pressure check up tomorrow, I can already tell what the outcome of that will be

    I have 3 cats at home to keep me busy and some art stuff. I was doing my mums jigsaw puzzle which distracted me for a good hour or so. 

    Its just the fear of the unknown and not knowing what's going on 

  • MissCatlover,

    So sorry you are going through this, it's absolutely shocking how some of us have been treated, I've had numerous delays and awful communication, I eventually made formal complaints to the PALS team at my hospital and I had a friend see my posts on my social media who is a reporter so she did a story, its only then that things started to move a bit, but u should have been told where they were referring you to and how long it should take, its not good enough when we already have enough stress.

  • FormerMember
    FormerMember

    Update-  mum rang gp today they said they rang the clinic and they are busy and delayed and it will take a few weeks to receive an appointment. They said a triage nurse would be in contact

    Feeling a bit frustrated again

    I don't know what to feel to be honest I feel a bit numb 

    Will let you know if anything changes 

    Hope you all are well and safe :)