I had a DIEP flap reconstruction with mastectomy 3.5 weeks ago and unfortunately nothing really went to plan. I had a haematoma the next day so straight back into surgery. Because my DCIS was so close to the surface the skin was left very thin and that with the trauma of the second surgery meant I developed skin necrosis. Three weeks later and the wound is still terrifying. I go weekly to dressings clinic and the surgeon manually debrides the wound which is not pleasant. Today my wound looks like a deep fleshy mess with no skin over it dead or otherwise. I change the dressing myself daily but have to psych myself up each time as it’s quite traumatising.
is there anyone out there who has been through a similar experience? I’m finding it a very lonely time.
If you Google 'diep reconstruction uk group' and scroll down the page a bit there's a group of 2.5k members which is excellent for info and support. They often post pictures in the comments and quite a few have had healing issues too, with updates. It's a website starting with the letter F.
Thank you. I didn’t know about this group so I’ve requested to join and really appreciate your suggestion.
I had a diep successfully in January but I just wanted to empathise. These things are a real possibility and you always hope it won’t happen to you, it must feel like a real blow after what you’ve been through. Honestly sometimes all of this is crap. I hope it starts to actually heal soon and you can get on with recovery. All the very best to you x
Yay! Hopefully you can get on and post something today or tomorrow. Fingers crossed you start to heal soon:) x
I hope this might help. I had diep in December and had problems with my scar healing too - also due to skin being so thin. I was back at the hospital every week and my bathroom looked like a pharmacy. I got pretty adept at changing all sorts of dressings and felt like a nurse. I know you feel like it won’t heal but it will. They talked about a skin graft at one point but just as I got a date for the surgery it started healing well and ps decided not to go ahead. Mine took 12 weeks in the end and I have a lot of scarring (which will be tidied up) but it seems like a distant memory now. Hang in there
Thank you for your kind words. It does feel like it will never heal, but the oncologist said 12 weeks is typical and it’s not been 4 yet, so as you had a similar timeframe I think I just need to be patient.
Definitely, the group has so much information from people who have had DIEPs so it was a really great suggestion and has made me feel much less alone x
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