Undiagnosed but been called back early after breast core biopsy

FormerMember
FormerMember
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Hello. I went to Nightingale centre, Manchester this Monday evening. I’ve had cysts aspirations etc several times before. The issue this time was pain in my boob,generally felt fuller  and soreness and it just didn’t feelFace palmght. I have fibrous boobs anyway, but it felt different to the other. Doctor examined me and graded me a P3? Explaining he couldnt say it was cancer but felt the usual ultrasound and monogram wouldFace palm inconclusive again ( last there 2019) nipple had also become inverted at this point. He too said it didn’t feel right. The whole experience was different, they scanned my arm Pit, the radiographFace palmsaid it was reassuring that my lymph nodes looked ok, she asked had I lost weight? Any other symptoms never had this before!! Then had mammogram and 3 core biopsy’s of the area. The doctor said IFace palmuld get an appointment for 2 weeks. However if the results were benign I would receive notification via call or letter  before so don’t need the appointment. Anyway today is Wednesday I get a callFace palm 10am from the nightingale centre saying I have an apt on 27/4 ( hadn’t even rec’d this letter) however doctors wants to see me next Tuesday?? I’m clearly fearing the worst as I only went Monday Face palmht. It’s bank hol this weekend so basically apart from tomorrow Tuesday is the next working day. I know it must be bad, I’m frightened. Any advice please x sorry for long post Face palm♀️

  • Try not to worry. It could just be a cancellation and they've popped you in or the need to do more tests because it's inconclusive. 

    If they have found anything at least you know your being treated as a priority and taking the best care of you x 

  • FormerMember
    FormerMember

    Thank you. 

  • Wishing you all the best for your results. Whatever they say, you can do this. All here to support you  Jo x

  • FormerMember
    FormerMember in reply to GANDER

    Thank you Blush much appreciated x 

  • The radiographer's question shows that at least one person there is thinking wide and not blinkered, which is good. This is because while the presentation you are showing can indeed lead to a breast cancer diagnosis, it can also be a marker to other conditions. 

    As for the P3, if this is out of the scale I am thinking of, it has the meaning of uncertain but likely to be benign. 

    From what you said so far I am getting the impression that the team looking after you is determined to leave no stone unturned, which is great. Clearly they are unable to say at this point that they are certain this is a benign situation,and a 2-days turnover from pathology would be the fastest in recorded history, so I am guessing they do not yet have that. It is possible that the appointment was given as per what the doctor told you, that you would get an appointment for 2 weeks, and that once the results are back, if they show no trouble, you would get another phone call to tell you that and cancel the appointment. If however the results are trouble, whether cancer or something else, or inconclusive, they would want you to keep the appointment. 

  • FormerMember
    FormerMember in reply to GreyCats

    Thanks for your reply. The appointment he said would be two weeks after the biopsy, which would be 27/4, this can thru yesterday. The call yesterday was from the Nightingale centre telling me to Face palmin on Tuesday which is almost a week early? . It just doesn’t  sit comfortably that they have called  2 days after biopsy asking me to go in basically 2 working days later, due to the bank hols? Face palmt seems really really quick Face palm♀️

  • I get that. Here is how it works: pathology do their thing, the results are then sent back. Next, it goes to the multi-disciplinary team (MDT) that in most hospitals meet once a week. I really cannot see any possible way of all of this happening within the space of less than two days from you going there on Monday evening, to receiving the phone call on Wednesday during the day. Therefore the phone call is very unlikely to be related to the pathology results. 

    I am now wondering if scheduling saw an opening a week earlier and decided to give you that slot, oblivious to the fact that two weeks are needed for pathology to deliver and the MDT to go over it (which they do even when the results are completely benign) so that your oncologist or nurse can then deliver the results to you.

    By the way, it is not uncommon for a phone call to be made prior to a letter being sent. I have had quite a few of these phone calls from scheduling wanting to know if the dates they had in mind were ok for me. Just recently I had two such phone calls, one for a scan, one for a surgery date. The letter for the scan arrived about a week later, once I confirmed the date over the phone.

    I realise there is no way you can relax really until you sit face to face with the doctor on Tuesday, and I hope you get good news on that day, or at least an explanation that would help put your mind more at ease.

  • When I have had biopsy on two occasions, 2015 and 2018 I've had the results in 7 days and 5 days.  First time they gave me appointment at the time for a week later, good or bad.  They said even good results need to be talked over for future monitoring.  This was at BC screening unit.  MDT meeting later that week and just had phone call to say all was as discussed and surgery next.  Second time at my annual follow up mammogram had biopsy Monday and the promised phone call didn't come Friday so I rang . She didn't ring as she was trying to get me follow up appointment.  She said biopsy was fine but they wanted to repeat mammogram to be 100% sure.  Thankfully it was fine .  All clinic work differently and we stress ourselves out trying to interpret what their actions around appointments mean!  

  • FormerMember
    FormerMember in reply to GreyCats

    Thank you Blush. Not a lot I can do now just wait. I appreciate you taking the time t reply xx 

  • FormerMember
    FormerMember in reply to Grogg

    Yes I agree, I think all hospitals work slightly differently. When he explained the process after taking the three biopsies he made it clear that I would get an apt for 2 weeks time. How ever in thFlushedmeantime if I receive notification that all is ok, I disregard the apt and don’t go. So as you can imagine when hospital rand 2 days after the biopsy to day doctor wants to see you earlier than 27/Flushedand told me Tuesday I immediately went into panic. In hindsight I should of asked why? But I just didn’t. I’m calmer than I was and just need to wait now. I’m asking questions really that no one caFlushedanswer really, sorry about that. Was just so shocked Flushed. Thank you for responding it’s very much appreciated x