Ductal carcinoma grade 1

  • 71 replies
  • 287 subscribers
  • 3538 views

Hi all 

received my diagnosis today on two areas. New sizes given. 11mm and 5 mm   Both areas grade 1. I asked about mri or ct scan and said I prob won’t be getting them. Not sure why. Consultant booked in for 20 April to give me my op date and treatment plan. Have been told nodes looked clear on ultra sound but will be taking one out to check.  They said it will prob be radium treatment and not sure about chemo until after the op when they have the pathologist check 

Funny how a diagnosis can make you feel relieved in some ways. I’m now on a more positive road to fight this. Thank you for all who has listened and responded to my concerns and it has totally held me together this last week. When the waiting game is the very hardest of this horrible journey. 

Hugs and much love to everyone going through this pain x 

  • Hi . I know what you mean, getting a diagnosis and a plan is a weird relief in some ways. Good luck with getting the details of your treatment  x

    Community Champion badge

  • Hi Army, They do MRI and CT scans (as well as other types of scans) to investigate the possibility of spread to other areas, or when they need additional  details regarding what they already know. In your case it sounds like apart from the pathology report after surgery they already have all the information, so there is no need for additional scans. You can talk to your nurse and ask her to explain this in more detail, ask any additional questions and make sure you feel ok with the plan, or voice any concerns if you don't.

  • Thank you. I’m feeling optimistic although still surreal I have been diagnosed with cancer. Still at start of my journey so prayers it runs smoothly as can be x 

  • Thank you for this information. I will speak to consultant about this in more detail next week. I would rather have the scans just to confirm all is ok in those areas. 
    not sure what questions I need to ask but I’m sure by next week my head will be full of questions and emotions. 
    good luck on your journey also 

    this forum has been a god send. Through the mist traumatic week. Full of wisdom and struggles. My journey is just starting x 

  • Hi Army

    Greycats is right about why they are not doing any more scans at this point. I was diagnosed with a 8mm grade 2 IDC after a routine mammogram. I had surgery and a Sentinel Node Biopsy as is proposed for you. Clear margins, no surprises in surgery and  node was clear so straight onto 5 sessions of radiotherapy . My treatment was over in 3 months from diagnosis bar 5 years of hormone therapy.

    They will be very unlikely to do further scans unless you have other symptoms or they need more info. As grecats says, like me it seems they are confident they know what they need to know so straight to surgery. Surgery can throw up a surprise sometimes ( different grade post pathology for example ) but hopefully your treatment will be as quick and straightforward as mine 

    Best wishes xx

  • Thank you so much. My second area was 8mm by radiologist then 11mm by the pathologist who did my biopsy results. Fingers crossed then it’s a good outcome after surgery. It is a frightening ordeal and I feel very lucky at present mine is what it is now. Hope that this remains like yourself. And 3 months on your on your on your road of recovery. This is great news. 
    all the best x 

  • You are very welcome

    It's a rollercoaster for sure and you're at the worse part right now. Grade 1 is the lowest grade so that's a good indication also. I'm 57 and very post menopausal and was told from the start mine was very " sortable" . It was a "typical"  hormone receptive IDC which is very common ..mine was very hormonal fuelled (7/8 ER and 8/8 PR) and HER2 negative so didn't need chemo but do have the joys of anastrozole for the next 5 years ( now 4.5yrs I'm counting!!) I am getting joint pain and stiffness but hoping that settles and find acupuncture really helpful for that and general wellbeing. I'm working full time and back to doing everything I did pre diagnosis in November last year 

    What I will say is don't neglect your emotional needs. I was fortunate and got through surgery and RT without physical ssues..I had 4 weeks off in total plus some flexi working as my employer is great. However the emotional impact is there and I'm having some counselling now to help process things. I also had a private consultation with an oncologist to review my diagnosis and prognosis which was really helpful and helped me regain my positivity. 

    You may not need that support but I share what has helped me in case you feel similarly. Straightforward treatment is great in lots of ways but one has still had a cancer diagnosis and that impacts. 

    I wish you well with your treatment and everything is looking positive for you 

    Xx

  • Thank you. This is so informative. I will look into this properly when I have my visit with the consultant. Just hoping it goes as smooth with him as it did with the dr that gave me the results x 

    1. Hi 

    i k is it’s only been a week since biopsy. I had one core needle and one vaccum biopsy. 
    the needle biopsy has healed very well. My vaccum biopsy is still very black and blue and I can now feel a hard lump inside. Would this be normal with this biopsy. It’s not really painful just I Can feel a lump now when before I didn’t have a lump. 
    xx

  • Hi 

    I had 3 core biopsies,  bruised significantly with them and was " lumpy" afterwards for a couple of weeks. I understand breast tissue is very sensitive so I'm sure what you're experiencing is normal but perhaps give the breast clinic a ring ..were you given a contact  ahead of your consultant appointment? 

    Xx