Hello new to group.
I am just had 7 th of 8 chemotherapy cycles last Thursday, having a first appointment for sorting out Radiotherapy tomorrow, suffering from bone and muscle pain from chemotherapy over last few days. To have Radiotherapy it will be a 60 mile round journey. Anyone with ideas to help me cope with this as also very tired too. I would love any suggestions to help me cope as today feeling very worried that this is so new to me.
Thank You.
Hi Mousely welcome to the forum. That sounds like it has been a long haul for you but the light is in view at the end of the tunnel.
I imagine that the session tomorrow is a planning session which gives them some idea of where to target the treatment so you will be marked up and have a CT scan and then you will be sent or given appointment times and there may be some time lapses between these sessions starting if that makes sense.
Have they said how many radiotherapy sessions that you will be having as I understand that they are now able to give the required treatment over a shorter time frame but with more concentrated treatment.
You are going to be exhausted and the treatment when you get to it, will only take up to 20 minutes at a time so its a long journey for you and you will need to rest up as much as you can and when you can. Is there anyone that could help with driving you back and forth or even sharing that journey with you? xxxx
Hi Mousely
I was worried about my radiotherapy drive, it was an hour each way. I didn’t want to ask anyone to drive me even though I had lots of offers due to covid and taking such a chunk out of someone else’s day. I started 4 weeks after chemo finished and was beginning to feel better and managed ok. I did Thursday and Friday the 1st week, had Wednesday off the 2nd week, had 3 weeks altogether over 4 weeks.
I was tired at the end but I did manage. X
I really feel they need to fund more of these centres as I can see so many people have really long journeys. I am so lucky to live in Manchester but my aunt lives 50 miles away and this was still her nearest radiotherapy place. All the best and I hope you get some recovery time x
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