Advice needed

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Hello everyone 

So I had my mastectomy back in January and I was meant to start radiotherapy last week for three weeks. They thought I had fluid in the wound so it got postponed and an appointment was made for me to have the fluid drained.. when I went to the appointment there was no fluid they think it is just my rib. I have had my radiotherapy CT planning scan today and have had the start date of my radiotherapy for the 21st of April. I can't help but feel really annoyed because I've now missed my slot. Do you think my cancer could get out of control waiting all this time since my mastectomy? I am so stressed about it and my daughter's hen do and wedding is all in may and I just wanted it all done and dusted. Any advice about what I should do would be great x

  • I hope I can ease your mind a little - I don't know if you have overlooked this.... I hope that when you had your mastectomy ...... if I understand it correctly when you had your mastectomy - this operation would have removed "it" - it would be gone.  
    The radiotherapy is 'extra care' a belt and bracers a "in case".

    Of course I can't give you this guarantee. The radiotherapy was an in case/to mop up if there was any rogue cells.

    I had a lumpectomy and in theory this operation was to remove "it" and radiotherapy as a "to be safe".

    For more peace of mind you could contact the online Macmillan nurses and ask for their advice.

    Like I say - I would of believed from the day you had your mastectomy - "it" was gone.

    I hope this helps a little - others should come along soo and offer their advice.

    In the meantime here is a gentle Hugging

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • That's my understanding too. If clear margins and not in lymph nodes etc then tumour is gone. My chemo, RT, Herceptin Injections and Anasteazole tablets are all to try and prevent recurrence as mine was hormone receptive. Slight delays shouldn't be too much of an issue, I'm led to believe. Jo x

  • I’m sorry to hear you had to have a mastectomy, I had one in Feb too and I thought mine was all gone to, but they Found it in the lymph node they removed. I’m waiting for oncologist to discuss radiotherapy and chemo versus an Optima trial which I believe is a mop up to prevent reoccurrence. 

    I am sending you hope that your radiotherapy will be complete in time to enjoy the hen do and wedding celebrations, try and stay positive, as these should be to prevent reoccurrence as I’m sure the regular follow ups would show any changes or need for any other treatment. Be kind to yourself, you are strong to go through the mastectomy as this is a challenge but you got through this stage, radiotherapy is the next stage of your recovery, sending you a big hug Hugging 

    can I ask what made you think you had fluid in the wound, this is what I’m worried about to as I don’t have any scans scheduled not sure if the oncologist does these, as mine implant feels very hard and anxious im something is wrong but trying not to dwell on this.

  • Good morning

    Thanks for your response back to me. My main concern is that 7 out of 14 nodes contained Cancer cells x

  • Good morning

    I hope your operation went well, it's quite a lot to go through isn't it. I also had nodes which contained Cancer cells.. this is why waiting all of this extra time really concerns me.

    My wound basically looked like a little boob it was shaped like ther was fluid underneath but actually it was just my rib underneath My skin. I must have very boney ribs xx

  • Good morning Sunrise over mountains unfortunately my margins were not clear 7 out of 14 nodes contained cqncer which is why I am worried about how long this delay could affect me. X

  • hi I also had 5 out of 11 nodes affected, I can understand why you are concerned....I had a slight delay as my op was middle of December and treatment not till 12 Jan,  I can only talk about my treatment, but its my understanding if nodes effected its usual to have both chemo and radiotherapy I am currently half way through chemo then radiotherapy later in year. my docs letter said there was evidence of capsular release I guess meaning some cells had escaped from nodes, but ct scan showed no sign of cancer settling anywhere else so treatment is just blast any cells

    . I was misdiagnosed for over a year as was told my breast and armpit pain was hormonal.  Still here, still plodding on and onco said he is still treating as early breast cancer. grade 2 tumour, stage 3 as has spread to nodes. please voice your concerns to the team, last thing you want is more anxiety x 

  • Hello thank you for your message back to me. What kind of chemo are you on now if you don't mind me asking? I am now on kadcyla for 14 rounds as well as my radiotherapy. I am just so scared that it's spreading as I am waiting. We're you given a full body scan after your mastectomy? I would love to be reassured that it's not gone else where as I haven't had a full scan since my first diagnosis. Xx

  • I had a lumpectomy.  I'm on 4 x cycles of EC Followed by 4 cycles of Docetaxal, short break of around I month then radiotherapy not sure how long yet. I think the radiotherapy will be concentrated on collarbone area as that's the next place it would travel to from armpit, that's what I'm expecting . is kadcyla oral chemo? my tumour was close to chest wall. hence why missed. it was 3.1 cm x

  • sorry forgot to say I had ct scan after lumpectomy to make sure no organ spread and before start of treatment I guess they needed that yo figure out chemo or treatment was best way forward. despite a long misdiagnosis I had no evidence of cancer after op. try not to worry easier said than done, tumour was grade 2 so fairly slow growing. 1 bring slowest 2 next slowest and then 3 faster growing. bear in mind this is only what I have found out for myself!  when I went to first onco appt I was fully expecting stage 4 due to long misdiagnosis , such a relief stage 3 for me x