Well, I went for the results today and not the news I had hoped for but the news I sort of knew was coming. I have none invasive breast cancer (DCIS). I'm still processing everything and have a mountain of paperwork to read through.
The one thing I'm focusing on is it's early and treatable.
Got to have an ultrasound to check my lymph nodes in the next few days then a follow up in 2 weeks to discuss my options:-
1. Full mastectomy without reconstruction
2. Above but with reconstruction
3. Removal of the area without any work to match my 2 boobs
4. Above but work to match my 2 boobs
(I think that's right - so much to take in, digest and think about)
Still can't believe this is me writing about me
How large is area, what size boobs are you. I was offered at diagnosis removal and reduction on other side to match. Told to go away and think about. Made a decision, just removal, to be told thry had decided at MDT meeting this was best option as cosmetically good result. I now have a small dent . I'm a 36/38 G.
Hi. Thanks for replying. Hoping you are well on your way to recovery now.
The area is within 5cm, I'm a 36 C and they said removal of the area is possible with work to match the 2. To be honest I'm not bothered whether they match them or not. I can live with wonky boobs.
Can I ask how long you had to.wait for your op?
Xx
It feels so unreal doesn't it? I had my diagnosis of DCIS at the beginning of December. I remember hearing "early" "treatable" and "if correct this will have no impact on your longevity". He also said that a lumpectomy could be explored but he expected that I would opt for a mastectomy. I thought he was mad. Why would I opt for a mastectomy? But I did opt for a mastectomy and it was the right option for me. I know now that even if we had tried the lumpectomy and radiotherapy I would have had to have had a mastectomy in the end. I opted for nothing else other than the mastectomy. I wanted minimal treatment and back into my life as soon as possible. I am 36D/DD so I am lop sided but getting used to it and don't mind it as much as I thought I would. I use a breast form sometimes, but also getting comfortable being flat in some situations like when running or wearing certain clothes. I am six weeks post mastectomy now. I am out in the world again seeing people and doing things. I've restarted running, walking every day, loving yoga and doing okay. I'm still a bit struck with just how strange all this is from time to time, but less so than the early days. I am amazed at my progress each week. Emotionally, it will be a bit of a rolllercoaster, but hang on tight and hopefully you'll feel more like yourself before too long. xx
Thanks for replying. It's very surreal. I'm 100% positive 1 minute and 100% negative the next. Very tearful at this moment but trying to be brave as its our daughter's birthday and she has been through a roller coaster - finding out at 18 she is Autistic. She is just starting to get her life together and bang, my diagnosis could just throw a spanner in the works
I'm grateful for this group so I can just be me and how i feel at the minute. Even if noone replies, just writing stuff down gets it out of my head.
I know we have a bumpy road ahead and not sure how I'm going to cope along the way but reading all the positive outcomes on here, gives me hope.
I was diagnosed 3rd June and had surgery mid July . Was due to be in June but delayed due to holiday commitments from my surgeon and radiotherapy dr clashing as I needed a guide wire inserted as they hadn't put in markers during biopsy. I also went on my ire planned NY holiday a few days after diagnosis.
I'm almost 7 years post diagnosis.
Radiotherapy was ok at the time, a bit feeling undignified as you I had to lie naked from the waist up whilst being put into position. It felt sore after and a week on I’m still finding it a bit painful and bright red skin. Slapping on loads of moisturiser.
It has cause tiredness which is bad. Had a follow up call from the Macmillan radiotherapy nurse today and everything is on track.
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