Tinnitus & Tamoxifen

Hi last time I had breast cancer I took tamoxifen, the side effects were really bad for me but I know many people are fine, it was so bad it effected my ability to do my job or run my life as effectively, I stopped it, now my breast cancer is back the other side, I will never know if this is a result of stopping or not

Hi, i have been on tamoxifen for about 3 months and i too have noticed that my tinnitus has gotten much worse. I am also exhausted and tearful. I am hoping that it will improve over time as it is a bit of a slog at the mo. Wishing you all best with your treatment. 

Hi, I have been suffering with Tinnitus and was told by BCN and Consultant its not Tamoxifen causing it.  GP was also adamant that its not a listed side effect.  They all have linked it to me having covid recently.  Its so interesting that on here though so mAny report as a side effect. Ive been referred to an ENT specialist so will be interesting what they say! Im also finding joints and bones ache first thing in morning and as I loosen up in day it gets better.  Plus weight gain which is really annoying having lost some weight when I got my diagnosis, now its really hard to keep off.  

I am so sorry to hear your cancer is back. 
I agree, I have questioned if all the side effects are worth it. 

Chinese acupuncture has helped but not with the tinnitus.

i wish you all the luck in the world X

Hey,

My treatment is done but the side effects are worse than evertything else I have gone through. It is very frustrating.

i wish you all the best X

Every side effect I have had, the oncologist tells me it is because I work too many hours!

so I cut my hours & hello, still the same issues which is proof it is the Tamoxifen.

Now I do not want to even tell the oncologist as I sm sure he thinks I am going mad. Of course writing on here shows we are all having the same issues & still are not listened to. It is very upsetting.

please update us on how you get on

thanks

Thank you all for your kind wishes and back at you  I’m back in in March for a mastectomy and Tram & MS Tram Flap and nods, and Iv been fore warned it’s a long recovery but I will not be taking tamoxifen after I just felt ill the whole time taking it and I don’t want that again, I want to focus on recovery. I hope you manage to get it sorted out and find something with less side effects

Hi all, I have developed tinnitus since going on Anastrozole. I’m sure it’s because of the low oestrogen. Very irritating and interestingly is worse atm since I got Covid a couple of weeks ago. The fatigue is worse too. However I’m lucky that I’m retired, so I continue with the best treatment for me which is getting out walking. Sadly I think there are a lot of side effects that the medics just don’t want to acknowledge. It’s not going to stop me popping the pills as I’m desperate to do everything I can to reduce the chance of recurrence. Love to all, HFxx 

And look what I just found…. And I’m sure I’ve read something about tinnitus and lack of oestrogen before….