Frustrated

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Hi everyone, I just need to vent for a moment. I live in Ireland, Co. Donegal. I had my lumpectomy 2 weeks ago, waiting for oncology appointment. I have been trying to apply for a discretionary medical card online. But they want to know treatment costs, so I have to go back to gp tomorrow, so that they can do it for me. They are really helpful, but I feel like I am just going back and forth organising paperwork. 

I have just shut down the computer, sitting on couch and suddenly feel like crying. I am trying to distract myself, but first thing in my head when I wake up in the morning is BREAST CANCER. And I haven't even started any treatment yet. Some days I deal pretty well with the situation and on other days I can't believe this is happening. I am sure you all feel the same. I just need to let off some steam, as other people usually tell me, ah you'll be fine. Don't worry. Easier said than done.

Okay, that's it, enough venting, for now anyway. 

  • Well I would say vent away. We know how you feel. Paperwork is frustrating. I'm assuming the rules are different in Ireland as the hospital just signed a prescriptioon form and you send it off and get free prescriptions for 5 years. I finished rads in mid September and I'm still having spells of wobble days. My emotions and hormones are all over the place. Its a very stressful, emotional time and just cos you've had surgery or in my case finished treatment, people expect you to just be the same and I'm not. Take it one day at a time x

  • this is the right place to vent . I could think of nothing but breast cancer, any cancer, chemo, surgery scans, worry worry worry night and day honestly for 2 months . could not turn brain off and talked about it incessantly to anyone who would listen including the dog. It's only now, 3 months after diagnosis that my brain has calmed a bit. I think its perfectly normal, it's huge news to take in. Reading positive posts and blogs really helped. I watched Victoria Derbyshire video diary of her cancer and that really helped too x

  • You’ve come to the right place. Sometimes it’s just really overwhelming. As I was saying to a friend today on this very forum, why does it all have to be such hard work!! I have to say when I actually started chemo a certain rhythm took over and you get into a weird routine around hospital appointments, etc, but the rest of it can be pretty taxing sometimes. Do you need chemo do you know? X

  • other people usually tell me, ah you'll be fine. Don't worry.

    I am reminded of someone on this forum talking about exactly this, and she said something along the lines of, "Can I too have a look into your crystal ball?"

    Regarding paperwork and applying for different finance-related things: is there a Maggie's centre near you? If so, they are highly recommended; they can give a lot of help with paperwork and finance-related applications.

  • Yes, chemo, radiotherapy and hormone therapy. I actually can't wait to start the chemo, at least I have a plan then. People seem to think this is something like a bad flu, take your meds and you'll be fine.

    Like I said my gp is really good, I know they'll help me with the application. Its just frustrating sometimes. 

  • No, no Maggie's centre. I'll see how I get on with the gp. I am sure it'll work out, just getting there is sometimes tough.

  • By the way, everyone here is really great. This kind of support is so important. Thanks and hugs to everyone xx

  • Hi B1975,

    With you 100%, I was literally told on the 7th Feb, so my head is still in the shed phase but trying to face it head on, so glad I found this chat group as finding it good to talk to people, so.always here if you need a chat? X

  • Hi icela, ya its tough, especially the waiting. Trying to keep busy. Spent last night ordering scarves and beanies. 

    Hoping to meet with oncology next week, so hopefully will know a bit more then. Do you know any treatment plan yet? Surgery?

  • Well. You’ve done phase1, which is brilliant so just concentrate on the chemo for now and put the rest aside if you can, I found it easier to break it down into next steps rather than it all head of me as one big thing. I know what you mean about the paperwork/official stuff, it can be frustrating, just extra things you don’t need x