Feeling very low today. I am 6 months past my last chemo and the numbness in my fingers and feet is no better at all. I am a crafter and am desperate to get back to papercrafting but my horrible numb fingers just don't do what I want. Was anle to crochet until the letrozole caused such bad pain in my wrist joints I had to stop that too. Does anyone have any ideas how I can make things better. I am all alone with this. No family or close friends nearby
Feel really sad and lonely but so, so want to feel better. I have been told how well I have coped with all the treatment (surgery, chemo and radiotherapy) but no one saw the tears I was shedding behind closed doors. Now that treatment is over I am supposed to be really happy and "cured" but I'm not. No one seems to understand just how awful it is all the time, it's harder than I ever imagined it would be. I'd be grateful for your thoughts, xx
I'm feeling sad today too and waay behind you ..well done for getting through all that treatment...I'm only on 2nd cycle of chemo and already feeling like this is just going to take forever and everything I have! it must be so upsetting not to do the things you love and are good at....weather not helping is it ..we can only look forward to spring and you must seek advice re fingers x thinking of you x
My oncologist is no good. Don't think he likes me questioning him. Want to give Letrozole a good go but I really am struggling.
Sorry you are sad too. Do you have support. It's difficult doing it all on my own. Best friend abandoned me not long after diagnosis, but I have made it this far without her. We are stronger than we think! Good luck with your treatment, xx
I do have support hubby is great but I'm on my own a lot while he works I think that's when I get sad, nervous about having visitors as I got a chest infection last cycle and darent risk it. don't think you don't have friends you have a ton of here xx
I empathise. Had a low few days. Weather has been dire so not been out. Boob still sore, achy and my sleep is crap. Everyone thinks that cos you finished treatment then you're back to normal but I'm different emotionally and mentally. Niggling annoying effects that not sure if it menopause or tamoxifen - such cold hands all the time, dodgy tum (could be stress as coping with a parent with Alzheimer's), like you achy hands, stiff fingers. My care has been good but after care non existent. I got the most out of the physio when I found my armpit all puffy and swollen post rads who was very good at giving me ideas of post treatment that no one else had. Have had more feedback and contact from this forum and have made some lovely friends too. I too am not one for forum but this site has been a godsend. Where are you in the country? Do you have a Maggie's near by? I'm tired of feeling crap but just taking it one day at a time. We are here for you x
Hello Moggy, I´m sorry to read you´re feeling sad. It can be a very lonely experience all of this and much harder without a support network around you. But we are here and understand and can chat whenever you want to.
You could also try contacting Macmillan about support groups nearby you. I think someone else has mentioned finding out if there´s a Maggie´s as well?
Do you have the option to change your oncologist? It doesn´t sound very helpful if he doesn´t like you asking questions! After all, how can we find out what´s going on or how to improve our situation if we don´t ask?! Silly man
About your crafting, that must be really frustrating. You could maybe ask in the "treatment" message board if anyone knows of something that helps with numbness etc or again, get in touch with Macmillan. It might be a question of patience and time but it wouldn´t hurt to ask.
Big hugs,
Doria x
Glad I'm not the only one who's been made to feel that they should be "better" now. I'd go thru chemo again rather than the miserable situation I'm in now and I really do mean that. At least chemo had a purpose that I could understand but the letrozole I'm just not convinced is the right thing. Have you or anyone out there been given their percentage score of how likely the cancer is to come back with or without letrozole? I was never told this but I have read somewhere that it can make as little as 0.5% difference. If that's true why am I bothering? I lost my Dad to vascular dementia so I feel for you, it's a cruel disease. My good neighbour was diagnosed last year so I'm on that journey again with her. Life never gets any easier does it? Not heard of Maggie but will suss it out. Stay strong, xx
Thanx for your post. Just feeling more fed up than usual, maybe it's the awful weather! I too have an incredibly sore boob from the radiotherapy but I only got one physio phone call when I was told at I should've been doing my after surgery exercises again. Nobody had told me that I was meant to start them up again BEFORE radiotherapy. Silly me thought that once I was all healed and OK after t surgery that I didn't need the exercises any more. Sometimes during this whole process I have felt that I have not been properly informed or else it's been assumed that I know things that actually, don't know! Anyway a sore boob is the least of my worries. Will try and find out about Maggie tomorrow but now I'm off to bed!
xx
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