So, having had a recurrence on my mastectomy scar 3 weeks ago I got results from my surgeon who told me it had changed from dcis to grade 3 breast cancer and told me that at the MDT they decided I need chemotherapy. We had a discussion of when it would start, I had mri scan which came back clear! Thank goodness. On Monday night I went to meet the oncologist and when I got there he thought I was there for a review of my mastectomy. He didn’t know I had recurrence or little op to remove lump. It was so distressing! There had been an admin error where no one updated him. He bluffed his way through meeting and ended up saying I prob wouldn’t get chemo and there would be a certain amount of self management ie check for lumps. Considering I have found 3 lumps in the past year, had lumpectomy, radiotherapy, mastectomy and now found another lump I am so distressed at the way it was left. My husband contacted my surgeon yesterday and huge apologies etc etc and I’m now having ct scan tomorrow and they are meeting again to discuss my case and decide what treatment. I was so happy up until now with my care but honestly feel so let down. I’m praying this is a blip and normal service will resume. Just needed to get it out!
That’s exactly what I feel too! I will try and insist that this is the case. Thankyou 
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Jane
