medication

FormerMember
FormerMember
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Hi has anyone on here had a break from there medication due to side effects ? I've struggled with letrozole and aromasin.  I'm seeing oncologist end of month and getting anxious about going back on meds. I know I have no options as the meds will stop cancer returning as my cancer was hormone receptive. had a mastectomy last Feb with immediate reconstruction that seems a dodle compared to meds.any tinsmith needed

regards

Huntsmoor 

  • Yes but I’m worried not good idea as the first chemo shoved me royally into menopause and my bloods declared eostrogen at menopausal level still and at 49 after a year of it still no periods etc and post menopausal now I’m on TDM1 but letrezole was taking my day as bones so sore I’ve two primary children still and it was impossible however I haven’t told oncologist yet I feel I’ll get the usual rant but I’m in two minds I think it’s important to keep taking it if you not properly in menopause as eostrogen not low but then too low and you’re in pain …catch 22 it does reduce recurrence rates significantly I will try again next month but want a clear discussion not five mins of oh you naughty girl etc six months seems to be when it improves …I’ll let my 11 and 8 ye old know that …honestly 

  • FormerMember
    FormerMember

    I've been taken off tamoxifen by my oncologist for a month, to double check that everything I have been going through, all the side effects is definitely caused by it.

  • I think the AI made things worse and I was afraid of not being fully functional for kids ..it’s been a month and I feel better but know I’ll have to go back on them again I might not have given them long enough to get used to them prob need a proper chat with oncologist as couldn’t stick the bone pain around two young children hope u get answer and an alternative is found x

  • FormerMember
    FormerMember in reply to Lovejellies

    Think I will be trying the 10mg dose as I can't function on the 20mg

  • Ahh that’s a thought I didn’t think you could change dosage level don’t know why I thought that …I’ll def be giving that a go as didn’t want to stop this site great for common sense Thumbsup

  • Hi can you get lower dose of letrozole?? 

  • I’m not sure but I’ll ask at next apt ..if not I’m asking for help with it as I can’t be sore all time with kids my back sore enough at times lol