No chemo trial

Hi your results news is amazing, I am currently having chemo. But what is a no chemo trial pls. Best wishes xx

Hi

Do you mean the Optima Study? If so, I'm part of the trial! Unfortunately I still had to go ahead with the Chemo! And as you probably know, you don't get to find out which trial 'group' you're in! Quite frustrating not to know the full results, but still glad I'm contributing towards the trial - will help patients in the future! I have to complete questionnaires throughout my treatment, which I see as something productive I can at least do for others! 

Signing up for the trial didn't cause any delays either - I heard back less than a week after signing the paperwork! So Chemo wasn't delayed, which I was personally pleased about! 

Let me know if you have any more questions or concerns x x 

You just have radiotherapy  and hormone therapy if needed. Only offered if tumour size/number of positive nodes/ receptors fit a certain criteria.  Think it's because chemo doesn't always give more protection.  

Haversham thanks for getting back to me. Wasn't named optima but same rules, you don't know what group you're in. I understand it may be 3 weeks til I get oncologist appt.  Hopefully then I will have more idea. 

The other name it's referred to as is Prosigna - which is the name of the test they use to make an accurate personal decision about chemotherapy! 

Let me know if you want to discuss further x x 

Hi I opted for the Optima trial too, they use the Prosigma test to decide whether Chemo will benefit and in my case my tissue sample was tested and they found chemo would be of no benefit to me, so I have Letrozole for 10 yrs, zoladex injections, zometa every 6 months for 3 years and 5 days of radiotherapy, I’ve just completed day 2 .

Hi 

I’m on the optima trial and was given chemo. Don’t know if I’m making this up or it’s what they told me but a computer decides wither your chosen for the trial or chemo while I’m writing this it doesn’t sound true. Chemo brain in action. 
take care

Anne xx

prosignia trial is two random groups  one gets the chemo treatment that was already deemed necessary by their consultant.  The other group gets tested to assess the effectiveness of chemo on their particular cancer. If the test shows that treatment with chemo would not necessarily be beneficial, it is not given.

 I had Oncotype testing (not a trial) and it was discovered that chemo would be more harmful that beneficial so I am having RT and Letrozole hormone therapy. Prosignia is testing more DNA than Oncotype.

Hi, also been signed up ,no brainer really why have chemo and all the risks of side effects if you don't need it .I can see this being the normal roll out with cancer in 5 years and people asking do i really have to have chemo if it is not going to benefit my condition.

Yes that's the name I found. I'm just a bit worried that I'll be left to it with no monitoring if I don't have the chemo. I'll no doubt have more questions for you one I get the oncologist appt.