Has anyone been suffering tailbone pain? During my chemo it seemed to go everywhere I was in agony and could barely walk. Post chemo it’s now coccyx pain. Any one else?
Hi, I've not experienced this myself, sorry, but I noticed your post had no responses and dropped off the first page as the site is busy so my response will bump it back up for you and hopefully someone with some relevant experience will be along soon. Hope your pain eases.
I was suffering with lower back pain prior to my diagnosis. My oncologist told me that if there were any existing conditions, chemotherapy was likely to exacerbate them. In my case this is definitely true. Three years after treatment I cannot stand for longer than 5 minutes as the pain I experience is excruciating. It's having a massive impact on my day to day life as its stopping me from living! I was discharged by the physiotherapist during Covid and told I would be placed on a waiting list to see if I can have pain killing injections but due to Covid I'm still waiting and its now two and a half years later! I am now seeking help from a private chiropractor in the hope they will be able to do something for me and more importantly that I'll be able to afford to keep seeing her if she can. I live in hope. The only advice I can give is don't hang around waiting as I did, seek whatever help you can immediately. Take care x
Hi Grenda12. Wow I was never told this by my oncologist and the chemo targeted that area to such an extent I could barely walk. I had to get sticks to help me. I had massive nerve spasms around my coccyx and butt which lasted for weeks, in fact months. I’m now back to coccyx pain so I try to walk every day, but I’ve just had an eye operation so can’t see. Don’t want to risk falling over. I’ve started taking magnesium and I swear it’s helping. Poor you it must be awful not being able to stand for long. I’m going back to physio - I couldn’t go when the pain was so bad. I wish I could help your pain, there is nothing worse. I was on painkillers but they never took the pain away. Have you had a scan? Sending me very best to you J xxx
After reading your reply I'm flabbergasted, during treatment I too found it difficult to walk and had to use a chair to get me from the car into my appointments as at times I felt I would collapse, my cancer team denied there was any reason why I should be like this but they then started reducing the strength of the treatments and changed me to weekly instead of 3 weekly so I suspected they had heard of this previously. I have been left with chemo induced peripheral neuropathy in my hands and feet, my feet being the worse where I have constant pins and needles and numbness but just the numbness in my hands, again I was not told about this and only discovered it through my own research. I have also experienced and still do, the nerve spasms you speak of, my whole body vibrates, from my neck all the way down my back, it's so painful when it happens, I thought I was pulling a muscle or something but after reading your reply I can see now that this is also associated with the treatments. I have had a scan, the explanation they have given is that the 'jelly between the discs in my back has deteriorated, therefore when I stand the discs rub together'. Physio told me there is nothing they can do other than put me on the waiting list to see if I am able to receive the pain killing injections, if I am eligible there is no guarantee they will work. They said they can't operate because the pain is not going down my legs? I'm pinning all my hopes on the chiropractor now as even a small reduction in the pain will be worth it, the medication I'm on now isn't doing anything. I have read on other posts about magnesium and so I have ordered some, anything is worth a try. My Doctor is nothing more than useless and he has told me its age and I'm to expect these aches and pains. I'm 54 and aches and pains I could put up with! I've given up going to him now. Take care xx
Grenda12 Hi again. Wow it’s amazing finding you. I’m sorry your GP is inadequate, I agree we need to take this on ourselves and I really hope the chiropractor can help. It was suggested I have an injection into the coccyx area but it never came to that. My oncologist put me on Pregabalin and Naproxens for the pain but I don’t think that helped much. Are you taking painkillers? I too was put in a wheelchair after one of my radiotherapy sessions which helped shorten my walk to the station. My feet are not right I don’t have full feeling in them. My hands seem weaker but I can feel them and use them. I’m sure it’s neuropathy. My oncologist couldn’t work out why I had such pain!!! When I had an appointment with my breast surgeon he said straight away “neuropathy”! 3 years ago I was playing tennis regularly, walking every day, gardening and generally quite active. My main pain now is coccyx although I have a bit of arthritis in lower back and inflammation of the sacrum. I really think you should be referred for a second opinion to a back specialist. No-one should be in such pain these days. You are only 54 and deserve better. Please push on - I feel for you. Still can’t see out of left eye, check up on Friday. Take care sending my very best to you. J xx
