Double mastectomy with immediate reconstruction

FormerMember
FormerMember
  • 7 replies
  • 277 subscribers
  • 1157 views

Hopefully happy weekend everyone 

I have 2 more chemo (EC) cycles l for invasive ductile carcinoma grade 2 HER2+ve  & ER8

saw my breast surgeons on Thursday and the plan is to have double mastectomy with immediate reconstruction provisional date:21/2/22

just checking with you all wonderful people if there is anything I need to know… those tips no one tells you 

it’s a massive surgery but I ve heard there is lots of success stories…. Has any of you been through similar?

I will appreciate any helpful information 

I ve been given booklets to read before I see my surgeon again…. I need to decide which type of reconstruction I want ThinkingThinkingSee no evilSee no evil

Thankyou all for always being available with lots of info… I have leant a lot on this platform 

Wishing you all a very merry Christmas and hopefully a cancer free new year 

having my 6th Chemo on 22nd … so no Christmas for me Frowning2️

  • FormerMember
    FormerMember

    Hi shaz T

    i had a mastectomy in febuary this year and reconstuction at the same time i opted for the diep surgery and can say it went well and looks good , yes you have a big scar on your tummy below bikini line but that will fade as for my new boob that looks amazing had the nipple done and tattooing looks normal . After surgery the hardest bit for me was the cough from the anesetic backache from laying flat for so long then bent forward due to tummy feeling very tight after surgery but everyday you get better and straighter. honey and lemon for cough constantley heat pads or hot water bottle for back. my daughter stayed with me for a week so i could get out and walk daily just a few steps. when i look back i felt like i had been hit by a bus but 9 months later i joined a gym do classes and lots of swimmimg,i hope you find this helpful i wish i had joined on this website before my operation

    have a good xmas

  • FormerMember
    FormerMember in reply to FormerMember

    Wow! Thankyou Huntsmoor

    this is very encouraging Thankyou so much

    its good to hear it’s worth it

    Whats diep? I am guessing it’s a type reconstruction.. from what I have been reading 

    there 3 types .. silicone…. Temporary & permanent 
    and own tissue 

    I am getting inclined to using my own tissue and skin ThinkingThinkingThinking

  • FormerMember
    FormerMember

    Hi Shaz T                                                                                                                                                                                                               I had a double Mastectomy  with immediate  reconstruction in July 2017, I chose implants . I would  really recommend a reclining chair for sleeping in, you do not have any upper body strength to push yourself up with and a v pillow really helps too. I had yearly checks and in 2019 i had some heart shaped nipples tattoo on that made such a difference to me when looking in a mirror, i know it sound silly but i really missed my nipples.  I love to go on holidays abroad and wear a bikini and people are shocked if i tell them i have had a double mastectomy.  i  hope i have helped you with life after surgery.  i wish you the best of luck with your choice of reconstruction.  Have a good Christmas.

  • FormerMember
    FormerMember

    I had a bilateral mastectomy in August it was much easier than the chemo I just finished.  It's a walk in the park compared . It takes about 8 hours don't go home until you feel ready not much pain . I didn't want reconstruction so you may need a little more recovery time than me and surgery may take a little longer . But nothing to be worried  about . 

    Take care Jayne 

  • FormerMember
    FormerMember in reply to FormerMember

    I used my own skin from my tummy 2 for the price of 1 lol tummy tuck . yes it felt tight but manageable I had op on Wednesday out on Friday much to my daughters shock. Getting up and moving about best thing to do . yes your feel shattered rest when you can do the exercises they help . if you need anymore support let me know 

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou so much everyone 

    already learning and I like the sound of the operation being easier than chemo… chemo is downer indeed anything better than it is very welcome 

    Also liking your satisfaction results 

    cough backache and remedies for this

    walking and exercise as soon as possible even a few steps

    recliner chair and V shaped pillows 

    all taken note Pray tone4Pray tone4Pray tone4… I am sure I will have more to ask through the journey 

    Thankyou once Again and compliments of the season

  • I was diagnosed with breast cancer 2 years ago, stage 1 Grade 3. I have COPD and Asthma also sleep apnea so the anaesthetist erred on the edge of caution & so I took Letrozole. In 3 months had shrunk from.17mm to 9mm & 5 months later i wasn't found on the scan. 

    Bringing forward a year still nothing found on scan but a strange pain under my armpit that basically ive ignored as its intermittent  & thought it may be my back pack that I use to.carry my shopping up the stairs.

    My respiratory condition is so erratic & unpredictable I've been unable to have the Lumpectomy

    .