Hi, haven't posted in a while. Cancer free since Feb 2020. Still on letrozole and IV bis phosphonates.
I had a CT scan in July - had thot it was because lymphoedema physio was worried about my rib pain - she rested the base of her hand on them and I just about levitated lol.
Anyway, didn't get results, called in for follow up CT in November (Thot they mite have lost results) just got the results from breast nurse - fine, nothing there and she then said it would just be a follow up CT scan in February - what? Following up what? She just said not to worry and ended the call.
Of course now I'm worried lol
Anyone else have this many scans? Is it normal? Hoping it is and just didn't happen before because of lockdown
Stay safe
Sounds like they want a scan every six months or so, but also it seems Covid may have affected this during the later part of 2020. This is just a guess, based on the the idea that if they had found anything in the last scan they wouldn't have left it for another seven months but would have called you back in for further investigations. The nurse should have explained that, and you are within your rights to call back and ask for clarification.
You can ask. I have all of my scans up to a certain date on CD. I also tend to stand right over the doctor's shoulder and look at the scans as they appear on the screen, and if they are not on the screen and I want to see, I ask for them to be shown.
That said, the scans may hold little meaning unless you know what you are looking at, so if they appear on the screen and seem confusing or unclear, just ask the doctor to explain.
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