Okay, I am on round 4 of FECT chemotherapy - please can anyone help.
I am constantly having a high temperature and this is literally seeing me attend hospital quite a few times a week. My results are showing sign of a bacterial infection, but they are not able to show where, as my markers appear ok.
I am aware when my temperature rises, I have to ring my nurse, I do, I get took in, they put me on a drip drug and I am normally sent home, sometimes, I need a 12 hour course.
Most of the time, my temperature is high, I physically feel fine and honestly feel I am wasting A & E time. But because I am a chemo patient I have to go in and be checked.
This tends to happen when I am on the above needles or just after - I am convinced I am having a side effect from the needles, but my oncologist, chemo team and doctors are adamant it is the chemo that will be causing it and it has had to be tweaked.
I am just wondering if anyone has had this experience before - I literally leave hospital , get home take temp and it is up again and remains up, it is now getting to a point, where even A and E , said if you feel well but have a temperature - u should be fine, stay at home, but my chemo team are adamant I need to be seen every time.
But this is literally taking over our lives and the car can drive itself to hospital.
I came out of hospital on Monday, was home 20 mins and my temp has been high ever since, but I feel weak as normal and achy, which is how I normally feel on day 3 - 9. I have only ever been neutropenic once so far.
Just wondered if anyone has experienced this before.
Thank u xx
