Invasive and non invasive DCIS

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Just an update of everything. Diagnosed Sept 23rd with stage 2 HER2+ DCIS Initially after ct scan/mri lump was measured as 13mm...Single mastectomy on the 10th Nov, recovering well...went for my check up 2 days ago...the pathology results are just wow, we never anticipated how big it really was...well the invasive area was actually 26mm, the total area including previous number was actually 92mm! Wow, nobody expected those numbers, none of the scan picked it up, missed opportunity in April as that is when I first went to the hospital. 3 sentinel nodes biopsied and 1 out of those 3 showed cancerous cells, I'm having to have chemotherapy, Herceptin, Radiotherapy and also because it's showing hormone positive I also have to have tamoxifen for upto 10 years to reduce the risk of it reoccurring in my remaining breast. I'm just thankfull I stuck to my instincts and continued to go to the doctors regarding the lump as it would have never been found as everybody was saying it was a swollen gland, there is an ongoing investigation into my case. I'm thinking positive and won't let the cancer win.....if you read this far thank you, much love to you all going through this horrible disease xx

  • Oh Tizzy I’m sorry you have so much follow up. That can’t have been easy to hear. You sound so positive and that’s great - I’m sure that’s going to help You. Amazing how these words are all thrown around now and we know what each other mean - I’d never heard of any of them three months ago! 
    take care and make sure you’re having plenty of chocolate oranges for Christmas spirit x

  • Thank you for your reply , initially when they biopsied my axillary nodes they didn't show any signs of cancer cells but they were reactive, so at first we thought I didn't need and radiotherapy due to this, it was only when I had the mastectomy and everything was look at in greater detail. My first question was does this change the outcome for me...and thankfully I was told no, the outcome is still positive, it is still stage 2, it hasn't gone any further than the first lot of nodes, so I'm guessing the radiotherapy will specifically target that area. I hope you are well x

  • hi well done for sticking to your instincts. 

    I had a whopper of a tumour, around 70mm, which I was shocked by, as it didn't feel like a lump at all.  It had been missed in the 2012 scan so I'd had it 3 years without realising when I was actually diagnosed in 2015. 

    If you need tips on chemo just shout.

    Top 3:  

    3: careful with flossing, it's a top source of infection,

    2: stock up on ice lollies, good for nausea, best ones have fruit juice in.

    3: practice with porridge, I was able to squeeze vital nutrients into a bowl of porridge, like chopped up apple, a few nuts and seeds, banana, honey, dried fruit. Chemo strips out every vitamin and mineral and you need to get them back in somehow. 

    lots of love and hugs

    Carolyn

    xxx

     real life success stories to remind you that people do survive breast cancer

    https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

    Dr Peter Harvey

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     

  • Thank you so much , I will take your tips on board and make sure I'm stocked up on ice pops etc, chemo isn't due to start for a few weeks at least as I'm having to travel to a different hospital so my files have been sent over to them and I'm just waiting for them to get in contact with me. x