Hot painful soles of feet

Hi, I am sorry I can’t help you myself, but I did notice your post had slipped off the front page as the site is quite busy, so my reply will bump it up again ans hopefully someone will be along soon to answer. 

The painful feet sounds pretty uncomfortable so I hope you find some relief for this soon x

Hello Hmfm  The soles of my feet have been hot on & off since I started chemo (not kadcyla) but they are not particularly painful - more tingly/numb. It does seem worse at the end of the day and when I get up in the morning though. I've mentioned it to my nurse and oncologist and both have explained about peripheral neuropathy and I've been advised to let them know if the symptoms get any worse but I haven't been prescribed anything. On the plus side, the symptoms might go when the chemo stops. I think if your symptoms haven't improved with 10mg amitriptyline then it's worth speaking to your medical team to see what they advise as it may be that a higher dose or a different type of nerve pain relief might be better for you.      

Hello,

Lalalou74....is right. If you are in pain so that walking is difficult, you must talk to your oncologist asap. PN acts very quckly if left. Your oncologist will probably need to change your drug dose. Unfortunately, I didn't tell anyone as I thought these were just side effects I needed to put up with and they would disappear at the end of chemo. My feet peeled after they burnt and like you I had difficulty walking. Only then did I mention the problem. Too late as sadly nerves were permanently damaged. I now see a neurologist regularly and take a cocktail of B vitamins in the hope the damage won't get worse.

So please check out again the sensations you are experiencing. If you are told it's ok, great....but if you need further meds etc., you can't start them too soon.

Hope it goes better for you. PN affects a lot of people mildly but burning feet you can't walk on is not particularly mild so don't try to ignore it.

Take care. Love Karen

Thanks karen, I took 20mg amitryptilline last night and seemed to help. Will try speak to gp today 

Thanks lalalou 

Hello Hmfm,

I second Lacomtekp in that peripheral neuropathy is a serious issue and should be reported to your oncologist and hopefully taken seriously by them.  I had my Paclitaxel chemo reduced to 80% dose for the last 5 sessions but if I knew then what I know now about my feet, I might have stopped completely.  I struggled to walk 3 months after my chemo finished as my feet were so painful and it was the most depressing time of my whole treatment.

18 months down the line, the balls of my feet are still numb and when the weather is warm I still get a bit of burning sensation so these colder temperatures help!  I’ve had acupuncture for the past year which seems to have helped, and I also use Doxepin cream on my feet when the burning sensation occurs, which was prescribed by the pain team at the hospital and works really well.  There’s not a lot of other treatments which help, apart from the nerve pain drugs such as Gabapentin and Pregabalin, but they come with their own side effects so I’ve managed to avoid taking those so far.

I hope that you manage to talk it through with your team and get a plan going forward.  Wishing you all the best.

Loffie x

Thanks Loffie, I’m now on 20 mg amitryptilline at night and it actually helped last night as no burning on feet just overly warm. I keep thinking it’s the letrozole that’s giving me pain in heels when walking first thing in morning or from sitting too long !