I am 3 weeks post surgery WLE with LICAP flap. All good news really as clear margins taken and no lymph node involvement.
Just waiting (isn't waiting the worst thing!) for ONCOTYPE test results to come back for treatment plan.
You are warned about all the after effects of surgery etc but I wasn't prepared for the feeling of isolation that I feel.
This weekend I was supposed to be travelling to Belgium to show my dogs followed by a visit to se a good friend (that I haven't seen for nearly 2 years) in The Netherlands.
Next weekend a trip to Wales was planned.
All had to be cancelled.
I can't make plans for the future months including Xmas.
I am just sitting at home (I live on my own) whilst all around me are carrying on with their lives.
Just really hit home how much this wretched disease is changing my life!
Sorry for the self indulgent post! I am normally so positive about my diagnosis but having a down day!
I also live alone and am a generally active, positive person. I've just moved to a rural vilage which was meant to offer me freedom from the masses, but already I feel sucked into a void and I've not had the surgery yet.
I don't think you need to apologise for your feelings. They are honest, real and invariably will be shared to some extent by someone here, which might offer a little solidarity in expressing ourselves at the very least.
I feel exactly the same Fleurete . I'm waiting for my surgery (WLE with sentinel node) on 7th and, although life has gone on and I'm still working I'm frustrated by the uncertainty beyond surgery.
I hope I have the outcome you do from my surgery but even then will have likely radiotherapy I am told which means another block of time off work. And then of course there is the ongoing drug therapy
Like you I'm usually a positive optimistic person but right now I feel resentful and hacked off about how my life has been turned upside down and feel like I can't be bothered with Christmas.
I know I should feel grateful for the treatment and I am but I think these feelings are normal and you shouldn't give yourself a hard time about feeling what you feel. It has turned your life upside down but life will settle down again and we will come out the other side
Much love xx
Hi everyone. I what a mastectomy in June and axillary node clearance in August my Oncotype test came up low so no chemo (I'm the lucky one). My chest is hard and there's still a bit of swelling under the arm but after 6 months of having my life taken over by this I am now fine. I've taken on a 2 year old rescue puppy to keep me positive and get me off the sofa! Life will get better, I promise you xxx
Oh Fleurete - don’t apologise for post. It’s not self indulgent at all. It’s completely understandable. Getting a diagnosis just turns your world upside down. I also felt so trapped and the worst thing was not feeling like I could plan anything. It’s hard when people want you to as well and you try to stay positive but some days its just hard. Hold on and be kind to yourself. hopefully you will have more good days than bad going through this. I think it’s hard as like you said some days you feel positive and then for no reason you can feel So low about it all. Sending lots of love Xx
hi I'm waiting too, haven't got the date yet.. pre op appt tomorrow. my head is just busting with questions and emotions and worrying about my husband yes I'm lucky to have him ..worrying about me...,I'm not used to all the jargon on here all I know is 2cm tumour and lymph nodes affected. so much to learn. had visits from friends but obv it won't be every day. I feel very alone sometimes too. hang on in!
Hiya
Think better days to come. This is how I will approach chemo.
I know how u feel with emotions of all sorts. I think it hits people most who are active, want to do things and plan ahead plus someone who on the whole is pretty stable emotionally before diagnosis. I find my low confidence, being teary and mood swings hardest to deal with.
The days can chop and change and this really throws me off balance as mostly in the past I am happy go lucky person most upbeat nature, now shielding and fearing the worse at each phase of treatment/op and having to dig deep to find joy in life - such contrast!!
Don't beat yourself up as it's normal to be feeling alone....we do too and such mportant source this forum is for us to just chill be with each other virtually and provide some comfort, whinge moan at what is thrown at us.
So...please don't feel guilty about where you're at...don't feel alone. We are here fighting our best fight!! Better days will come...I keep telling myself this too...and like you I also love travelling and so I look forward to this treat afterwards!!!
C x
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