My nightmare

Hi

I am so sorry to read your post.  I'm hoping that the IF is the operative word here and as yet, it hasn't been confirmed as having spread to your neck and femoral lymph nodes?
I do think your oncologist is the best person to speak to regarding life expectancy because they will have more experience than most.  On saying that, I think we have all heard the stories of someone given months to live and they survive for years and years, so whatever is said is always going to be a best guess.  

Perhaps you could give the Macmillan team a call? on 0808 808 00 00 

I think it could prove useful to talk to an expert from Macmillan.

Kindest Wishes, Lesley

Thank you very much Lesley. Im not sure if I can trust my oncologist as she didn’t tell me that while I was waiting for chemo my cancer improved a lot. I had CT when there was only one 17mm tumor, in 3 weeks time there were 3 of them and much bigger in size. How can I hope that while it was growing so fast it wasn’t spreading from affected lymph node.

We can’t say for certain but no scan is perfect - my cancer failed to show up under any scans and was found when I had a lumpectomy for a small DCIS pre cancer. So it may have been that you were unlucky and those other lesions just didn’t show up the first time. Any multiple tumours - so called multifocal breast cancer isn’t necessarily more risky than single tumours. I’m suspecting that you’ll need more tests before they can tell if the cancer is spreading incredibly rapidly, and into the lymph nodes, as you fear, and if so, what treatments you’ll need. This must be so frightening for you but oncologists are unlikely to lie. In my opinion they’re sometimes more honest than we’d like. Maybe it’s still too early to be asking the “How long have I got?” conversation. Maybe you can answer the questions “What’s happening and what do you plan to do about it?”. Fingers and toes crossed for you

Thank you very much. I just don’t know what to think. Each time after effect of chemo is gone which is day 9-10, i get pain in my hip and neck. I can only hope it’s benign. 

I read online here somewhere someone also had hip pain. Try looking back (unless it was you) 

Yes I noticed about chemo related joint pain. As I have fibromyalgia I was like “Been there, done that”. Of course fibromyalgia doesn’t bring with it the fear of secondary cancer, which makes ever twinge feel sinister. Hope you get some reassurance soon ZSm

I have fibromyalgia too. 

It was me

I’ve seen a lot of people complaining of fibromyalgia type pains following chemo. Not just yourself and not just on this site