Hip pain could be mets

FormerMember
FormerMember
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I have been diagnosed with her2+++ in August. CT contrast didn’t show any mets but I had hip pain just before starting chemo. Now I have had 4 cycles of chemo and each time ~ 9 days after chemo my hip pain is back. I can’t understand while chemo is helping with my breast cancer symptoms so well why wouldn’t it help with hip pain if it’s mets. 

  • Hi there, maybe it's worth a chat with your oncologist specifically about the hip pain and your concerns, so that you can get a more firm diagnosis on this. Good luck 

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  • I’m sure if it was Mets it would be a constant pain not one that comes and goes xx

  • Is the chemo affecting your periods? It might be that is like a chemically induced menopause which could cause joint pain   or the chemo is affecting your nerves causing pain. Did you have a CT scan and/or nuclear bone scan because if the positive nodes?

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Are you having filgastrim injections? When I had 7 injections I had really painful hip pain around day 7/8/9 so it could be that. I also get dreadful muscle and bone aches with my chemo, any mets should have been picked up on your bone scan or/and MRI xx

  • FormerMember
    FormerMember

    Thank you all for your reply. I didn’t have bone scan. They say if I would have mets CT contrast(chest, abdomen, pelvis) would show that. But there was huge progression of my cancer between when I had CT and started treatment

    It’s hard if not impossible to look up right now. I can’t see light at the end of the tunnel. Im so worried it’s spreading despite chemo Disappointed

  • Hello.....

    As you can see from the suggestions there are so many possibilities and lots of guess work. To put your mind at rest, you must chat to your oncologist or at least your GP. They should be able either to reassure you about the results or order a PET scan which will give you a definitive answer.

    However, as you had a hip pain before treatment it may intetest to know the comments from my neuro surgeon. I was left, after chemo, with nerve damage but to begin with the biggest problem was a sciatic pain in my legs and buttocks. Scans revealed compression caused by a collapsing vertebrae and I needed an operation. Hence the neuro surgeon. He told me the chemo had almost certainly accelerated the deterioration but oncologists are reluctant to accept this. He sees too many post chemo patients for there to be no link. I am thinking that this may be the cause of your hip pain that you had prior to your diagnosis. As my doctor said....it isn't that you wouldn't have had a problem in the future that would have needed dealing with, but it needs dealing with much sooner because of the chemo.Hip pain is often arthritis.....could you have that?

    For the moment don't panic. I am sure that if you had had mets in the beginning, they would have shown up on something. Also the fact you don't feel chemo is helping the pain, suggests a different cause.

    I hope you get it sorted soon but do insist someone takes into consideration your worries. Your recovery depends on your mindset and constant worry isn't helping.

    • Take care. Love Karen
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  • The worrying is incredibly hard and definitely as other have said speak to your oncology team for reassurance, it really is unlikely to be mets though, there are so many more likely possibilities. Hopefully they can put your mind at rest. In the meantime I have found calling the Macmillan helpline and talking things through with a nurse to be incredibly calming and helpful. Hope you have a good Sunday xx

  • Hi 

    Bless you it’s so horrible having to carry all the worry around with you. I have back pain that comes and goes and worry the cancer has spread. But it’s a Sunday and not much we can do till Monday so I’ve found by making a plan for tomorrow. Ie ring Macmillan nurse or BC nurse at 10 am tomorrow takes away the pressure for today. You can’t do anything today so try take some control back , remember a solution will come and then if needs be you can deal with it. I suffered from stress a few years back I had some really bad headache s and terrible vertigo all because I was stressed! The body really does react to the mind so take a day off. Do something that will make you feel better. Tell yourself it’s ok to have a day off from the worry as you are getting some answers tomorrow! One day at a time puts you back in some control.

    take care of yourself x

  • Hello ZSm. I'd echo what others have said about raising this again with your medical team/oncologist or GP.  Just before my diagnosis in April I had started to get really bad pain in my hip which was keeping me awake at night and also causing me to hobble about at times. When I was given the diagnosis I was convinced that the cancer must have spread so was expecting bad news when sent for a CT & bone scan prior to chemo.

    When the result of the bone scan came back it was a massive relief to be told it had identified arthritis in my hip plus both shoulders, which I didn't know that I had, but I still insisted on seeing the scan result report myself before I could believe it. I'm still getting some pain in the hip occasionally after chemo - it seems to make most of my joints stiff & achy - but I have lost weight, am eating healthier and also going out for walks more and rarely notice the hip pain anymore. Your pain could be due to all sorts of things so getting someone to take a look at it, and hopefully a scan, will, I hope, bring some peace of mind x 

  • FormerMember
    FormerMember in reply to LalaLou

    Thank you very much for your support xx