Hi everyone I'm feeling terrified. In 2009 I was diagnosed with BC ER+Her2 neg, had Mastectomy & recon. 10 years later had recurrence in same breast, same cancer. I had lumpectomy and chemo & rads. Chemo finished July 2020. Mammogram Dec 20 clear. Today diagnosed Triple Negative breast cancer in opposite breast 35mm. Need more chemo!! How? That's all I keep asking, how? I only had chemo last year, just how is it possible to need it again so soon. I was told its aggressive so need chemo first then surgery. I thought I had done all my fighting. I'm angry that it's me again, but also terrified - I have a bad feeling this time. Can't sleep, been physically sick. I just cannot calm my head from all the thoughts of dread.
I’m sorry you find yourself here especially after having bc twice already. It really is so unfair. If it helps, I do know someone who’s also had bc 3 times now and she has been clear for 5 years so hope this will give you some encouragement to battle and beat this again.
I imagine as this is a new type this time, the previous chemo wouldn’t have been suited to it and so wouldn’t have been effective in prevention. I think a different type will need a completely different chemo regime tailored to suit. I’m fairly new here so still learning. I’m sure you’ll get lots of encouragement and support from others too x
HelloScareythistime. I am so sorry you have found yourself back in this situation. At least you know this is an early find. It is a new cancer as your Dec mammogram was clear.....triple negative will mean different treatment but six years ago I had 3 triple negative tumours removed which have so far stayed away.However, I thought you may be interested in a conversation I had with my surgeon at my five year sign off visit. I don't often share this because it might cause unnecessary alarm to some newly diagnosed for the first time but I think it might help you. He told me that recent research seems to be showing that people who had one breast cancer maybe prone to develop another. It will not be secondary just another primary and probably with different histology but it is the fact the person was prone to develop the original cancer , that those conditions may not have changed and therefore the second one develops. The time gap is unpredictable but he warned me to be vigilant. I live in an area where after BC mammograms are annual for the rest of my life. He said that part of this explanation comes from the improved survival rate from the original cancer. In the past, people often didn't survive the first cancer but now because people recover, as you did yourself, there is a tendency for a new cancer to begin. This research is early days.......they haven't determined what makes someone predisposed to develop the original cancer to help us prevent another but somehow this all makes sense. On these threads alone there are always people returning with a new tumour perhaps 5 or 10 or even 20 years on.
So I am really sorry you have to go through this again. Don't panic about the TNBC. It really isn't any more life threatening than other types. It's just that after chemo and radiotherapy, the other treatments can't be used so it feels that way but after 5 years that particular cancer is usually gone. I hope the new treatment goes well. Maybe your surgeon will have seen the same research and perhaps there has been some advancement in the explanations? It is nearly a year since I chatted with my surgeon.
Take care. I wish you well. Love Karen
I tried to discuss this with the Lead Radiotherapist in a telephone conversation (which had been changed 3 times in as many days so I wasn't in the best frame of mind, having to travel a long distance anyway to 15 sessions and felt she could have seen me for a few minutes in person). The response I got from her was that they felt they had done their job properly, to check for lumps although she agreed breasts could still feel lumpy anyway after treatment. I asked her why there were so many people, obvious from using this website, who, despite having gone through all the treatment inc radiotherapy still had a re-occurrence 6 months later, which made them understandably distraught. I have a friend who cries at the very thought of re-occurrence. I didn't used to give it a thought but having gone through so much treatment I do now.
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