Hello friends
I had my mastectomy and immediate reconstruction 2months , 2weeks ago but still waiting to start radiotherapy and I have not even seen my oncologist since surgery and I am so scared at this moment because I was supposed to see her so she decides when my indocrine. Treatment would start but have not heard anything yet
so I want to know if there is anyone here who waited 3months after before RT especially when you are told that the cancer is grade 2 and stage 3 and is spread to the neck area so it can’t be removed please help is giving me sleepless nights
any advise will be appreciated
Hi Lymp
Sorry to hear that the waiting has made you feel more anxious. All of us here have found the waiting to be torture.
I think that you should phone to your hospital and speak to your BC nurse today and explain that you had expected to have have heard something by now and ask what is happening, and when you can expect to have an appointment. Also, say that you will be prepared to take a cancellation, if you can attend at short notice, as a lot of people are having to self isolate at the moment and maybe cancel appointments. That is my best advice to you. If you don't get anywhere by that route, phone your GP and ask them to find out for you and don't get palmed off by the receptionist.
Although it shouldn't happen, sometimes when a recall appointment should be made it doesn't get made. This happened to me a couple of months ago. I did have an appointment to attend the chemo suite for maintenance doses of H&P, but I should have been given forms for bloods and a phone or face-to-face appt with oncology first.
I turned up to get my infusions and there was a great fuss as bloods had not been checked and no drugs had been ordered for me. Eventually I got the treatment hours later that day, but not without a lot of needless stress all round. When I spoke to my own BC nurse the next day she said that a request for the appointments that I didn't get had been sent to the secretaries, but for some reason had never been actioned. Real life happens! A lot of folk are being pinged because of Covid leaving departments short of admin staff.
Go for it. You will feel much better doing something about it and you have nothing to lose and everything to gain.
Let us know how you get on.
Big hugs
WallyDug
This is my issue I am not cleared no one said anything but before surgery I was told is spread into the neck area under the skin which can’t be removed so I know is not cleared my breast care nurse said I will have hormone treatment after RT but don’t know when am seein oncologist yet.
thank you all for the advice
I'm still waiting for my Oncotype test to come back it's 7 weeks since my surgery and still haven't seen an oncologist . I'm going to wait one more week and then going to start applying pressure to the health service. I wish you well Lump 2020. My cancer was stage 3 in one breast and stage 2 in the other. Maybe we can apply pressure together !
Cheers Jayne X
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