Hey. I've just joined, had a post op appointment yesterday, following surgery to remove a phyllodes tumour, left feeling so confused. I think he was trying to tell me he didn't remove enough healthy tissue, he has referred me to another hospital and said to expect more surgery, possibly a mastectomy, possibly chemo or radiotherapy. I've read chemo isn't the right treatment for these kinds of tumour. Anyone here had one? Are they just so unusual that my surgeon didn't know enough? It's 3am, can't sleep, feel lost.
