I was coping pretty well, had my lumpectomy on the 21st July, and chased up the results today, I was told I would have them in six weeks. I'm getting edgy so called to see if the results were in today just over 5 weeks, I was told they may be back next week then another week for the appointment. The calmness I felt so far just left me, my legs went to jelly, it sounds like a cliche but it happened, my legs just went weak, heart rate up, full on panic attack. I've managed to sleep for an hour and feeling calmer again. The waiting is just crippling, I was doing so wel but today is a bad day. Just needed to share that with people who would understand.
I feel for you Nora! <3
What a long wait. Absolutely awful. I'd been panicking too, probably much sooner than you did. Having no option but to just wait, wait is complete torture.
Here's hoping you can breeeaathe your way through the next few days and the results come swiftly.
Keep posting here in the meantime
Hi, have you received your results. I am five weeks post surgery, and have a telephone call the end of the week for results so will nearly be 6 weeks. It has crippled my mental health. Best wishes xxx
I spoke to the breast care nurse who has said my biopsies have been sent to a different NHS trust. Couldn't tell me why but they should be back soon and expecting a results appointment next week. That will be 8 utterly distressing weeks since my operation. In this time I've become more Ill most likely stress related. Once bowel cancer is hopefully eliminated it will only be IBS diagnosed and I have shingles. I am utterly stressed, upset and frustrated. I've tried so hard and stayed positive but 8 weeks on my upbeat front has gone.
If I don't get some news soon I'll be going to Pals too. I have been very patient, but literally can't take any more of this. Mine are showing two areas of microcalcification and they discuss two lesions though they say it is only one area measuring 35mm x 12mm, DCIS with a micro-invasion, the nodes appear normal. Though two nodes have been removed and are being biopsied. I had a wire guided wide local incision and sentinal node biopsy. That was the easy bit, the waiting and not knowing is the worst.
Knowing the delay is that they have sent it to another Health Authority tells me it's not going to be that easy and assume they must need further test or a second opinion. Who knows? Precovid these results could be back in a week from what I've read, I'm told the best case scenario, will be that I will get a results appointment next week but that is by no means certain. That's week 8.
I could have gone private at the start but the NHS were two weeks earlier on the operation date than I could get privately. But I would have had the results had I gone privately by now. Too late to change that. I've also spoken to the MacMillan line, thank goodness for them, who have been brilliant. I'm going to have to go to PALS as I can't wait any longer, I'm picking up illnesses and getting more and more anxious. Sorry today's not a good day.
Hi, please don't apologise, I understand you frustration, stress and anxiety, I am feeling the same. I have emailed PALS. How can this encourage people to act straight away on there symptoms then have there treatment delayed. I would always always advise to act immediately on symptoms, but now waited nearly 6 weeks for results, it's 6 weeks next week. I do have another call arranged the day after the mdt meeting so keeping my fingers crossed. They did advise they are expediting my results if possible. I am currently on letrozole which I started pre surgery. My mental health is in pieces. Really sorry to hear this has made you unwell. I hope you feel better soon, but the only way both of us can move forward is to have our results and know what our next treatment is. Best wishes xxx
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