Ok I need to talk!

  • 9 replies
  • 275 subscribers
  • 1041 views

Thank you to everyone who responded to my thread a few weeks ago but I think I’ve come to terms that I need to talk to professional. 
Im lucky, I’m a year post ops, chemo and radiation. I lived thru shielding, my daughter and granddaughter moving in due to a marriage breakdown. I had a clear yearly mammogram and an clear scan to confirm hardness is just scarring but now I’m so scared about reoccurrence of TNBC.

ive had 2 weeks of no sleeping and crying at slightest things. My family listen but I need advise. 
please could someone tell how I contact the people/nurses that you can phone privately please.

much appreciated xx 

  • Hi, so sorry you're having such a tough time. Macmillan offer 24/7 support, by chat or phone.  The number is 0808 808 00 00 or you can access their online chat in their main website. I hope this helps and I hope you can get the right support to help you through this.  Take care x

    Community Champion badge

  • Thank you for reading and replying  Irishgirl16. X 

  • I hope they help, they were brilliant when I had a total meltdown a few weeks ago. If you want to just write it all our we’re here to read and listen HeartHeartHeart️x

  • Thank you!

    im so glad you had the help and it did you good!
    It’s just so scary but feel silly as I’m in a gd place but my head won’t let me accept it, incase…… it comes back! I don’t want to be “I’m a survivor” then bang it’s back! 

    I teach so think being on holiday although I need the rest it’s too much thinking time.

    I don’t think I was like this at the beginning or during treatment, I was “I’m not leaving my family yet they need me” so why am I a wreck down. 
    I have the house to my self Tuesday so I will write it all down and phone them. X

  • Hi Kimbo56, so sorry you are having such a rough time at the moment, breastcancernow run a moving forward course and cancer support UK run a cancer coach course, both for people post treatment, hope that helps.  Love from Ann

  • Hi ,

    it’s so very understandable, when treatment finishes there’s always that nagging doubt, isn’t there? But it needs facing and dealing with, just as everyone has suggested. The macmillan helpline staff are just lovely, (had the need to phone myself only yesterday and the nurse gave me the help I needed) 

    I hope you’ve found the article written by Dr Peter Harvey on ‘when treatment finishes, what next?’ As it does explain how bereft we feel when that comfort blanket of regular checks and hospital visits comes to an end. 

    I expect that like most of us, any new ache or whatever gets you in a questioning frame of mind.

    Sending an understanding hug xxx

    Moomy

  • Hi. I was symilar to you. I was all good jocking through my treatment and as soon as it finished I was so scared of recurrence I was beside myself.I was crying each time someone start talking about cancer related things. My breast nurse contacted Fountaint Centre and I had counceling session one a week through zoom. I had 18 session and I cope much better now. I know you can contact them directly so maybe that's the way to go. 

  • 20 years ago my sister had Hodgkin’s. The shock was that the day she got the all clear,  I lost it totally and she unravelled a bit over the coming months. I recall having a really hard time after my DCIS was treated too. I think when you’re being treated and things cone flying at you, you don’t have time to process or digest what’s going on, it’s all to much and you’re just to ill. Then you get the all clear and you should be happy, should feel able to move on but that’s still not dealing with what has actually happened. At some point our brains make us deal with it I think. Maybe it’s been the school holidays but now you’ve got the anxiety and fear you didn’t have space for before, you don’t have a choice how any of this pans out and that’s really frightening because we like to think we can control things, but we couldn’t control getting cancer, how we treated cancer or what comes next and that is really frightening. I think it’s a great idea to write it all down and get it out there, sometimes verbalising it helps bring things into focus xx

  • FormerMember
    FormerMember

    Hi kImbo

    How you feeling

    x