DCIS high grade 35 years old

FormerMember
FormerMember
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Hello 

just wondering if anyone else is in a similar situation?

I am 35 and I have just been diagnosed with high grade DCIS. 

So far I have had; ultrasound, biopsy, MRI and DBT. 

I have 10 days to decide on a single mastectomy with reconstruction OR a lumpectomy taking 40% away and replaced with either side tissue from side of my back or if not enough to take from side then muscle from my back, this option would be two operations. 

breast doc is positive about the lumpectomy option.

Is anyone going through anything similar? 

Rach x

  • Hi Rach

    Getting a diagnosis is scary - I was diagnosed in April with high grade DCIS but I’m 60.  The prognosis for DCIS is very good so hold that thought.  I had a therapeutic mammoplasty in May & had the lower inner quadrant of my left breast removed & my nipple repositioned. A lumpectomy wasn’t really an option due to size & the results wouldn’t have been good.  For me personally the surgeon said there was no benefit in having a mastectomy.  The result for me is a smaller left breast - they didn’t need to reconstruct using any additional tissue fortunately - the extensive droopage helped!!   I’m really happy with the results but have the option to have my right breast reduced next year.  Not sure I’ll bother if things stay as they are.  The operation wasn’t as bad as I thought it might be & I recovered quickly.  I’ve just finished 5 days radiotherapy which was an accelerated course.  That too was ok with very few side effects so far just a bit tired doing nothing!  I wish you all the best.  Trust your team they know what they’re doing.  Don’t be frightened to ask lots of questions.  Good luck.

  • FormerMember
    FormerMember

    Hi

    DCIS grade 3 (2cm) I'm 54 and was found during a routine mamogram,  I was told a mastectomy wasn't required and not to be considered by both BC nurse and surgeon. Had a lumpectomy and results showed clear margins but small so went back 3 day later for another scrape. The result are due Monday, BC nurse is confident that the margin will be clear again but until those results are read out I won't know

    It a big decision and one only u can make, whatever you decide it was right at the time

    Take care do your research and find a group chat with people who can help x 

  • I'm 6 year post high grade DCIS.  Click on my name to see more detail.  I'd be guided by surgeon regarding surgery .  

    1. Hi. I was diagnosed at 34 year with high grade DCIS. I had only option on mastectomy as my tumor was 10cm and lymph nodes was involved.. Think what will make you feel good and confident. Surgeons can advise but won't make the decision for you.
  • FormerMember
    FormerMember in reply to April2021

    Thank you v much for your reply, your words have been v helpful… I will definitely hold on to that thought about the prognosis.  Good luck to you as well… 

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you v much for your reply… I agree it’s a big decision and a personal choice. I really hope you get the clear results. Thank you for your message.. good luck and take care x 

  • FormerMember
    FormerMember in reply to Grogg

    Thank you for your reply… I will have a look on your profile thank you for sharing. 

  • FormerMember
    FormerMember in reply to Sparklers85

    Hi, thanks for replying to my post we are similar age then.  Thanks for sharing x 

  • Thank you.  We’ll both get through this.

    sharon x