I had mascetomy in Feb ax clearance in April now on anastrozole and ibendronic for 10 years. I thought I was coping getting back to things. Joined local support group reached out to them no response. Probably think i should be coping by now. I think I should be.
I am depressed in pain I also now have lymphodema and have to wear sleeve, glove and compression bra. I am getting used to that.
I know I am lucky compared to many, I am usually positive.
My work has excluded me from the office on the grounds I am at risk of covid so I sit at home to work isolated. I am the only one not returning to the office, so my secret illness will now get questions I wanted to avoid.
I am so sorry to reach out but I know I need help
Hi Helen, I’m so sorry you are in this situation, I am also signed off work and it is hard I totally understand, I work in a school so I am not working at all and it’s too much mind space, I’ve found being on here very helpful just to hear other voices that reflect mine. You are still very early days in your recovery and you’re still in pain which is the most wearing thing emotionally, it grind you down. Can your medical team help you with the pain you’re still experiencing? Call your consultant if you haven’t, apologies if you have already. Post here and people will come to you, you’re further ahead in all of this than me so I can’t help practically but others will ️ also, I have found the Macmillan helpline to be a godsend when my mind has melted on me, do try calling them if you haven’t. You are not alone xx
That’s unacceptable from your gp. I have to say on the 2 occasions I’ve called they’ve called me straight back so 3 weeks is nonsense, complain. I do think the advice from the gp will ultimately be speak to your consultant so getting onto his secretary is a great idea xx
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