Hey, how is everyone . Had first chemo last week and suddenly feel overwhelmed, isolated and lonely. I have a million people worried about me, concerned , texting , phoning etc but I still feel anchor-less in scary waters. Don’t know how to get myself on an even footing. Anyone feel the same? I think it’s because although they try they don’t really understand?? All other experiences in life I’ve had a group or a friend dealing with the same thing at the same time but this feels different and scary. As I have a youngish family kids 15,13,10 years old I try to be “normal” at home but is so difficult. Is anyone in a similar situation? I’d love to chat x
Hello,
Not in a similar situation being both older and six years past treatment but I want you know on this chat line you are never on your own. Even now I have days when I know that my very caring family or friends who have known me thoughout the treatment will have no idea exactly how I'm feeling. But somehow just chatting on these threads, knowing everyone has similar days ( even if I don't mention my concerns that time) gives me such reassurance and support.
I suggest you pop over to the chat section and using the Awake thread, tell the ( mainly) ladies there about your worries and your down day. Alternatively, the monthly chemo thread will be full of people actually having treatment like yourself. You can share with them the daily feelings and I'm sure you'll feel less alone. Also they may have advice( same on Awake) if you need advice to deal with particular difficulty.
I understand why you want to stay up beat with your children because they are young but perhaps you should prepare them for your 'off' days so they understand that if you start to be unable to camouflage side effects, it isn't their fault. From my experience in teaching, young people can show an amazing resilience and common sense if included in a situation.
I hope you quickly make some new'online' friends. I have made some very good friendships with mine.
Take care. I wish you a sucessful recovery.
Love Karen
Hi,
I am further on than you (competed chemo and surgery) but I still have days where I feel that no one understands. I am the one that looks after everyone so I feel that I have to be strong for everyone else.
My advice to you is to be kind to yourself. Have a pity party but then pull yourself together. I sometimes do this daily! Cry when you need to. Do things you enjoy when you can. Let people help you. Tell people when you want to be on your own, or you're feeling rubbish and just want to sit quietly. Try some light exercise (altho I still can't do very much, but everyone is different).
It is a very scary and confusing time. But, it does get better. Believe me
Xx
Thank you x x also just realised that I was premenstral and always feel down then , so feeling much perkier now !!! Sam those hormones!!
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