Hi All,
New to this forum. I am 35 years old, married with two boys (12 & 18). Diagnosed with TNBC Invasive Ductal Carcinoma grade 3 back on 28th April 
Current plan is 4 rounds of EC then 4 rounds of Carboplatin & Paclitaxel. My wee alien body originally was thought to be 33mm but after MRI and CT it's actually 70mm with 3x2mm in the axillary tail. 2 nodes showing on scan as positive too. So not the greatest. Since finding out it has been a complete whirlwind of emotions, doctors apps, tears, tantrums! My main issue is the many many bad days that creep into my head, and I try my hardest to stay positive. I did google and it made me go into a complete downward spiral so I've tried to refrain but in doing so, it's prevented me from coming across forums like this. I am glad I have found this though as it is comforting to see that TNBC isn't actually as rare and terrifying as it's made out to be!
I have already had 2 rounds of the EC and the side effects haven't been too bad so far. I get three diff lots of tablets to take away with me along with injections. The worst is the exhaustion, I have to have quite a good few duvet days in the week to 10 days after but that's the worst. No sickness but not sure if that's down to the cocktail of anti sickness they give! My taste is a bit off and my appetite is practically non existent. I have some joint aches along with muscle soreness. But all in all I can't complain. They have said that it's cumulative though so expecting it to get worse. Either that or when I move onto the carbo/plat combination, that's when it will hit me.
Anyway, the point of this is to see how everyone else is living alongside going through treatment. I have been paranoid about the whole Sepsis side of things. We bought one of those inflatable hot tubs last year and had great fun using it, it's only my husband and myself that use it and we only ever fill it up when we plan on getting in, we don't leave the water in it. But I have been told it's not a good idea to use it or to go swimming! Has anyone else ever heard that? I love swimming and find is so relaxing so to be told I can't do that made me a but gutted. Also, wine, has everyone completely stopped with the alcohol? Glasses of wine have been a god send throughout adulthood and the stress of this would deffo require a glass or two lol.
Thanks to you all for being here, reading through the comments on other posts have helped me immensely and I'm sure others have felt the same. I'd be happy to connect with anyone for a chat. We can help each other beast this beast and get shot of all of the wee Aliens that have taken up residence in our bodies.
Speak soon 
xxxxx
That should have said the shittest club ever but so helpful!!!! Fat fingers on my phone 
Hi, my oncologist told me to be more careful about food, a bit like being pregnant, so I have been a avoiding undercooked meat, unpasteurised cheese etc. I have drunk wine, but I honestly haven’t felt like it that often, but consultant did say it was ok. Sorry, can't comment in swimming, but I have been out, safely, mostly outdoors and mask wearing. Best of luck x
