My partner had a mastectomy 20 April. She was ER+ PR+ HER2 -. Tumour size 48mm with one lympnode 19 mm but with no extracapsular spread. She has been prescribed the aromatase inhibitor Anastrozole and a bisphosphonate but the oncologist doesn't want to monitor or see her for 12 months. is that usual?
I thought the least would be every 6 months as a minimum?
Thanks.
I am fully discharged from oncologist, I won't be seeing them again. They saw me for the last time 4 months after chemo, which was 3 months post-surgery and 6 weeks post radiotherapy They were most interested in lasting effects of chemo and that I'd recovered from radiotherapy. We chatted about zoladex and exemestane but mainly just to say that most side effects subside within 6 months or so. I have an appointment with the pharmacist in December to see how I'm getting on with the hormone drugs, but I'm not seeing oncology any more. They have done their job!
I'm every 6 months, but due to covid it's been over the phone. Your wife should see her surgeon after her monogram annually, and can raise issues there. I had an ultrasound after I told my breast nurse about a small lump above my mastectomy and told the surgeon who referred me through the breast clinic.⁶
Just to add as well that my BCN said to me to get familiar with my new 'normal' in terms of how everything feels. Any changes at all, and I should be getting in touch with my GP. The yearly mammogram and any other check-ups are just a catch all and you can call at any time if you have any worries. Same would go for the hormone therapy, There are lts of different options so if your wife finds she's not getting on with Anastozole, then she can get in touch with GP/oncologist to change.
My GP said only the oncologist could change the medication.
The follow up normally is just a mammogram and surgeon meeting , and depending on what you have done and other treatment , the oncologists are normally yearly for a couple of years - I am almost discharged , 5 years in December. There are generally no scans etc , just a mammogram yearly for 5 years. It can feel very brutal!
Yes that is true, oncologist only for changing hormone therapy, not GP as well like I mistakenly said.
I guess I was trying to say that just because it feels like the appointments are dried up, it doesn't mean you are alone or can't change things if something doesn't suit. And I think what my BCN was trying to say to me was don't wait for appointments if you're not happy with something.
So in a way, it shouldn't really matter how many follow up appointments there are as you can always contact them at any time and get reassurance or something changed.
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